Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
Hi,
I love PC gaming, and have always been a gamer. I had all type of consoles and have now a gaming PC. I love Sim Racing in particular and since VR became widely available I'm fighting with myself. My Intelligence tells me as a person with Photosensitve Epilepsie, it is the worse I can do to myself, the gamer in me urges me to give it a go. My Epilepsie is under good control with medication and I have no seizures, I even drive a car. I wonder if anyone here was brave enough to give it a go… read more
QI have been addicted to gaming for 5 years now but I am big into slot machine games. I belong to clubs, work events together &have made lots of friends. Some of whom I have met in person
Even in my… read more
I know this is a problem not very many people on the site experiences but a lot of my old hobbies regarding magic the gathering Warhammer painting chess checkers cards of any sort I've had to give up because of my epilepsy a lot of my seizures happened because I was doing said things I guess because all the finally focused things a lot of my seizures are brought on by a focus and things of that nature does anybody else suffer from a similar case? And if so how do you manage them so yo can enjoy… read more
Because of this stupid pandemic I’m wiping my messages before I put them away that is exercise for me just now I only want to go out once a week and that is to go to the hairdressers and pick up… read more
When you are asked to take medication in the Morning and Night when Label on the box, would you follow it to 12 Hours between taking it, or what would you think of Various time in the Morning and A Various time at Night? If you didn't have a set 12 Hour Period would you think people would have more Seizures, Because I use to work early at 6am up to Last February, but would take my Medication at 9pm for Night , so this would be over a 12 Hour Period.
Has anyone here had that done? If so was it effective?
I know they have places in NSW,Victoria, and Queensland.
😩 I miss my VR especially the VR music and my fishing game 😣
I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?
I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too
So I'm going back to college. I start on August 11th. Here's my deal though. I've been in and out of college since I graduated in 2009 because of Epilepsy problems. I've gone to college three other times already. Also for three different things. Should have stayed with the same track I know but I'm indecisive and I get bored easily. First time I was at the community college, I was there for my AA but I had just found out that I had Epilepsy. My GPA started dropping near the end of a year and a… read more
read it write it sign it and Record it there are exceptions for our disability take an ASL class once you learn to sign you will surprise yourself how much you remember you muight find a new calling
Has anyone had side effects with certain foods, with your medications. Cause ever since I started taken lamitical I cant eat any of the spanish beans I used eat. Which is weird. It used to be fine when I ate spanish beans with rice but ever since I started taken lamitical for my seizures is that a side effect or no?
I'm on that but I'm just getting immune to every medicine 😢 I wouldn't take Felbamate