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Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Hi Have Any Of You Guys Had Temporal Lobectomy Surgery? If So What Is Outcome And Was It Successful
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

After approximately 18 years of trying all sorts of medications and treatments to control intractable daily / weekly temporal lobe seizures and approximately monthly grand mal seizures, I made the… read more

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Anyone Feel Defeated When They Have To Adjust Meds And Can't Drive?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No. I did lose the ability to drive b/c of complex partial seizures (new term used today after 2017 reclassification but you know what I mean) for about 3 yrs. But I'm driving again. So keep the… read more

Has Your Attention Span Shortened After A Seizure?
A MyEpilepsyTeam Member asked a question 💭

Since my last seizure, I find my attention span is much shorter, especially when reading. Anyone else experience this?

A MyEpilepsyTeam Member

Thanks, Kathryn13.

Is Anyone On Clobazam As I've Being Put On It Yet To Try
A MyEpilepsyTeam Member asked a question 💭

Had epilepsy since 2020 am 55 now was a shock to be fair am on keppa start on 50mg am on 1500 now still having sezure so hope this helps but I see some have had surgery and how's that being if they had surgery

A MyEpilepsyTeam Member

Kathryn,

I am pleased that unless I do not pay attention to my triggers, there are no problems. Not getting good quality sleep. not eating enough or properly, in my case being overheated are… read more

Sponsored Content
Learn more about available surgeries to treat epilepsy Read more >
Does Anyone Have Hormone Related Seizures?
A MyEpilepsyTeam Member asked a question 💭

Does anyone have hormonal related seizures? Seems like I have both because they come from two parts of my brain. But I have seizure activity around hormonal times (when estrogen is high or low) but I could also have a seizure because of stress.
What can you do for this kind of epilepsy?

A MyEpilepsyTeam Member

I once had severe drop down type of seizures around my monthly time Hormones are much needed by the brain. Research in 1980s made the connection of how the rise and fall of them which may cause moods… read more

About Flashback Problem
A MyEpilepsyTeam Member asked a question 💭

I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first

A MyEpilepsyTeam Member

Hum

Best Dating Sites On The Net For People With Epilepsy.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

That's right VeraBaker! Those that pray together stay together. When you put your trust in the Lord, all things work out for a married couple one way or another.