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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Smart Watch Apps Vs. Embrace 2
A MyEpilepsyTeam Member asked a question 💭

Hi all. My son recently started seizing (grand mal) again after 4 years of being seizure free. I’m looking to buy him a seizure alert device but wanted to know if anyone has any experience with them. I’m currently looking at My Medic Watch App which connects to a smartphone or the Embrace 2 Watch. Are there any other options out there? Your insight is much appreciated.

A MyEpilepsyTeam Member

Hi Becky. My son started having absent seizures when he was 7. At age 15 he suffered from his first grand mal (this happened after his father’s funeral. He died from congestive heart failure)… read more

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

What Should You Do If The Neurologist Does Not Give You A SAP Or Recommend A Seizure Rescue Medicine? (Seizure Action Plan)
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Thanks for the information and to the helpers! Very important and much appreciated!

Has Anyone Had The RNS SURGERY, Please Provide Me With Any Feedback.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Mine was like sean. I did a 14 day stay eeg one surgery , stitches. They monitored me for about 2 months then we started making adjustments. My battery change was a day surgery a lot smaller cut than… read more

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About Flashback Problem
A MyEpilepsyTeam Member asked a question 💭

I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first

A MyEpilepsyTeam Member

Hum

COLLEGE
A MyEpilepsyTeam Member asked a question 💭

anyone know how to get someone to back off if thier giving you a hard time about your epilepsy an related issues . My professor feels like I getting one over on the systems and i feel is riding my ass

A MyEpilepsyTeam Member

Yes file a complaint , he is just ignorant .

Please Get Me Some Good Dr Memes/pics
A MyEpilepsyTeam Member asked a question 💭

on another Q+A post, someone said 'give me a nice pic'. as a funny guy, i wanted to turn it around and make people smile. so i challange you to make a funny meme, pic, and/or gif of a hospital, testing, drs, nurses, and/or staff. i'll start...

A MyEpilepsyTeam Member

“No heart beat here “

Does Anyone Have Any Seizures That Present Similar To A Panick Attack? What About Before An Episode/after One?
A MyEpilepsyTeam Member asked a question 💭

It's happened quite a few times at bedtime most recently last night, i feel heavy and disconnected but also like my body is moving around, my eyes quickly moving around...

A MyEpilepsyTeam Member

After my right lobe craniotomy on 12-16-2020 being a constant burden on my family unable to help out, drive or work had a couple of trips via ambulance to the ER. Seen for: 8/2/2021
Pseudo seizures &… read more