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When did you get it?
1950s
1960s
1970s
1980s
1990s
2000s
Diagnosed 1992 I think winter. Oh wait nope summer.
Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
Hum
It's happened quite a few times at bedtime most recently last night, i feel heavy and disconnected but also like my body is moving around, my eyes quickly moving around...
After my right lobe craniotomy on 12-16-2020 being a constant burden on my family unable to help out, drive or work had a couple of trips via ambulance to the ER. Seen for: 8/2/2021
Pseudo seizures &… read more
John
Where I live they have made wearing masks up to us. We are still 6 feet away from one another. The small activities only allow 10 people in a room, still. I am sure the isolation when we could… read more
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
So after reading I've read many say they were out or doing something they had a siezure and kept doing what they were doing. Other than now knowing that aoras don't think I'm spelling correctly, are a siezure I guess..... If not what does everyone mean? They weren't flopping on the floor..... I now that's not the only type but I'm still confused.
Thanks for helping me try to understand. I figure asking here directly would help me more than a million things on the G search engine
Thanks… read more
When a period of time goes by that I don’t recall. I’ll ask if I had a seizure
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
This happened to me early in the morning i was experiencing a seizure then i started walking around my room I even climbed my lounger to look out my bedroom window I was keen at looking out my bedroom window then I snapped out of it ,I remember what happened but I didn't have control of my movements it was like I was in a trance state
First time this happened to me
I'm a bit concerned because I live in a 2 story house so if I did something crazy in that state like climb out my bedroom window I… read more
How would I make the world understand Eplisey? They would need to have it for a few years!?