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My son has focal seizures and on three meds .. he still gets seizures auras make it very hard for him … his doctors suggest a brain surgery as he has a brain injury during birth … any advice or recent experience anyone had ….
When did you get it?
1950s
1960s
1970s
1980s
1990s
2000s
Diagnosed 1992 I think winter. Oh wait nope summer.
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
It's happened quite a few times at bedtime most recently last night, i feel heavy and disconnected but also like my body is moving around, my eyes quickly moving around...
After my right lobe craniotomy on 12-16-2020 being a constant burden on my family unable to help out, drive or work had a couple of trips via ambulance to the ER. Seen for: 8/2/2021
Pseudo seizures &… read more
Can I find a teen group for my 17-year-old daughter with JEM to join?
I don't know about on other sites, but on this one have her use this link
https://www.myepilepsyteam.com/people
And then use assorted filters (so she can choose the gender and age of each person… read more
What is the difference between an aura and a petit seizure. When I have an aura in which can last for hours I feel like a riot is going on inside me. People have told me to say something. I don't always have a seizure. I don't want to be the boy that cried wolf all the time.
Thank you everyone for your patience with me. I am new on this on line and I don't know what I'm doing all the time.
Hope and pray everyone has a great day.
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
I’m a teenager and sometimes I feel like an outcast because I don’t have a license or a car. It just sucks asking for a ride all the time and they get mad at you. It’s just I’m struggling with this so much. I just want to feel like I have some control.
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I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more