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Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

What Do People Do For Anxiety Instead Of Meds? In Example Breathing Control.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Good way to help yourself. Like it.

Teaching And Epilepsy
A MyEpilepsyTeam Member asked a question 💭

I'm training to be a teacher and I was wondering if anyone is a teacher and has epilepsy? Is it difficult to manage your epilepsy and your job?

A MyEpilepsyTeam Member

Jono
I know exactly how you feel! All of my seizures have happened in the morning, and that makes me nervous since I'm at school early in the morning. I hope everything goes well with your teacher… read more

Uncontrolled Seizures And Job
A MyEpilepsyTeam Member asked a question 💭

Does anyone with uncontrolled seizures work at a job ? And if so doing what ? I have held 4 jobs in my life running heavy equipment , welding , a prison guard and my last one when epilipsey hit I was a Rig Manger for Nabors. I'm on disablity now but man do they give me a hard time I have looked but getting back and forth and my job experience I can no longer do any of that. I'm 41 Thanks

A MyEpilepsyTeam Member

I have worked 11 years as a janitor don’t know if I had more than one for sure or not because it was just me dumping trash and sometimes would get yelled at for skipping spaces but when I thought I… read more

Anyone Have A Goal But Can’t Complete Lack Of Motivation?
A MyEpilepsyTeam Member asked a question 💭

I’ve been trying to lose weight for 2 years now probably 3-4 honestly but losing pounds is definitely a challenge and building motivation is hard so usually I just listen to Motivational Music or something that describes a fight in a song. What do y’all do for more motivation? When you want to change.

A MyEpilepsyTeam Member

If you make a god of the medical field be careful! I learned about minds many working in the field. You so learn the great people and those who are still learning and admit to it! Those who don’t make… read more

Video EEG
A MyEpilepsyTeam Member asked a question 💭

I have to a video eeg done. I have watched some YouTube videos, but still have questions. Will they just stop all my medications as soon as i am in the hospital? Or what?

A MyEpilepsyTeam Member

It all depends on how long the EEGV is . For one day, they won’t do a thing with meds.

From 4 - 7 days they will decrease your meds little bit at a time everyday
They want to try and get as big of… read more

Left Temporal Lobe Surgery
A MyEpilepsyTeam Member asked a question 💭

My son is set to have left temporal lobectomy on September 28 2018. I am wanting to talk to people who have had this done and your experiences. We are very nervous.

A MyEpilepsyTeam Member

I had this surgery in 2000. I have issues with processing information, lower stress tolerance, impulsivity, and light and noise sensitivity. I also have additional memory problems that cause confusion… read more

Other Reasons Symptoms Occur?
A MyEpilepsyTeam Member asked a question 💭

I've had most of these side effects that can be related to epilepsy meds but if your female they can occur during the menopause, depending on your age .

A MyEpilepsyTeam Member

Hi, I understand what you mean about hormone levels cause I have been through the symptoms, take care.