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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

I'm Thinking About Going For A Disability Check, Do You'll Think I Should?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Raylene, There are two-2-types of Disability that Social Security issues they are: SSI and SSDI . Be certain that you get the type of Disability that you are qualified to receive. SSI only gives… read more

When You Were Told That Medication To Assist You, Did You Choose Surgery Or Alternative Solutions? How Well Did It Work For You?
A MyEpilepsyTeam Member asked a question 💭

I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.

If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more

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Jobs Vs Disability (SSDI)
A MyEpilepsyTeam Member asked a question 💭

Ive been fired from 6 jobs within the past year alone for "too many missed work days" due to seizures. Or my co-workers "being uncomfortable w my epilepsy and chance of seizures". I had a seizure at work at 2 of my jobs and was fired from both shortly after each. My question is, how do you handle others who don't understand epilepsy in the workplace? I'm currently applying for SSDI but it's taking FOREVER! Would you apply for disability or continue to work knowing it would be a less than 6… read more

A MyEpilepsyTeam Member

I applied for disability and had no problem getting it but my situation is a bit defferent because I became legally blind first. I can only see center vision on my left eye and on right lower vision… read more

What Experiences Do People Have With Lamictal And Briviact?
A MyEpilepsyTeam Member asked a question 💭

I am currently taking 1500 twice a day of Keppra and 150 of Vimpat twice a day. I have vision and fatigue as my two major side effects with Keppra and have talked with my doctor about switching medications. I would continue with the Vimpat, but switch my Keppra to either Lamictal or Briviact. I have done research on both, but would like to hear experiences people have had with both before I make any decisions.

Thank you in advance, I appreciate it!

A MyEpilepsyTeam Member

i had a side effect on Lamictal with Phenobarbital. It didn't work for me. I never been back on it since. That when i was in my 20's. I had a side effect Neurontin i still do to day they try that… read more

Vns Therapy
A MyEpilepsyTeam Member asked a question 💭

i want to know as much as possiable about it they r talking about doin this on my daughter

A MyEpilepsyTeam Member

I have a VNS also, I am not very organized so I don’t know where my 🧲 magnets have gone. The battery 🪫 in my VNS is dead 💀 right now. My neurologist recently told me there is a new and improved one… read more

How Many Of You Have Full-time Jobs Since Your Discovering You Had Epilepsy?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Hi ya it s not easy working with epilepsy I take my hat off to all them that do like you say it s when you're I'll and having to take time off bless you never give up ☺️

Hi Have Any Of You Guys Had Temporal Lobectomy Surgery? If So What Is Outcome And Was It Successful
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

After approximately 18 years of trying all sorts of medications and treatments to control intractable daily / weekly temporal lobe seizures and approximately monthly grand mal seizures, I made the… read more

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Does Anyone Take Oxcarbazepine? If So, Have U Noticed Any Side Effects?
A MyEpilepsyTeam Member asked a question 💭

I am also taking Divalproex...so if anyone is taking these two is it affecting you?

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , Continued from above: In mid 2019 I began having these verbal tics where I say or holler words, names, phrases or humming or moaning noises uncontrollably & I don’t know… read more

Who Has Had Surgery? What Made You Decide To Move Forward? How Was Your Experience, From Length To Recovery And Success/failure?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

It was in 2014 is when the big scare happened with one of my seizures sorry I was about 2 years off

Sponsored Content
Learn more about available surgeries to treat epilepsy Read more >