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Anyone Having Positive Results Microdosing?
A MyEpilepsyTeam Member asked a question 💭

I have Tonic-Clonic seizures every 2 weeks. I'm 51 and have been having them for 10 years now.
I started microdosing 3/10s of a gram and I still had my seizure every 2 weeks, but I went 4 months without a Tonic-Clonic seizure. https://www.magicmushrooms101.com
https://www.magicmushrooms101.com/shrooms-and-e...

A MyEpilepsyTeam Member

The past year ive been thinking of doing it. Im glad to hear it has sone kind of a positive affect and hope it gets even better for you 😊

What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Has Anyone's Neroligest Tol You That Low Potassium Was The Cause Of A Grand Maul?
A MyEpilepsyTeam Member asked a question 💭

My potassium was below a 3 when I 2 back to back. I'm now on 10 Meq's which is 8 pills a day.

A MyEpilepsyTeam Member

I asked a similar question I have had low potassium after seizures. And even prescriptions now given to me.

Do You Guys Drive With Having This Condition?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Absolutely not. It's bad enough I could crash seizing, I can't imagine hurting a family member, or even a stranger. But I understand the urge. I understand just wanting to be independent. I'm tempted… read more

Question About Dilantin
A MyEpilepsyTeam Member asked a question 💭

A couple of weeks ago, my doctor increased one of my medicines - Dilantin, and my body did not agree with that. This ended up making my body toxic. I was in in the hospital from 2/5 - 2/7 for my Dilantin level was so high which also made me dehydrated. I am doing better now, but not myself yet. My doctor is eager for me to get back on Dilantin, but I would rather wait at least a few more days for I think my level is still not as it should be.

I am still having pressure feeling on my chest at… read more

A MyEpilepsyTeam Member

My neurologist took me off Dilantin years ago. He said a certain side effect would cause cancer, liver and kidney failure. I'm currently taking lamotrigine which is the generic version of Lamictalread more

Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

If I Can Go Two Years Without A Seizure Will I Be Cured Of Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

Hi! I recently got diagnosed and I've been doing some research. I found an article that said if I go without a seizure for two years I won't need to take medication anymore and will essentially be cured. How true is this?

A MyEpilepsyTeam Member

You can't be cured of epilepsy at this time. But you're definitely in a safe place with your medication regimen, safe to drive, etc. If the meds you've been on has kept you seizure free for 2 years… read more

How Long Have You Had Seizures?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Since 2012

Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too

Was Wondering How Long It Takes Some People To Get Their Memory Back After A Seizure?
A MyEpilepsyTeam Member asked a question 💭

I sometimes find it takes a few days for my memory and concentration to get back to normal.

A MyEpilepsyTeam Member

I figure everyseizure is 3 ,4 days blanked out of my memory.in over55 years a ot of lost time.Onetime went to florida by car from massachusetts with some friends.Was entering florida had agrand mal.to… read more