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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

A MyEpilepsyTeam Member

Got that degree in 2012.

How Long Have You Had Seizures?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Since 2012

So After Having Seizures For 14 Yrs Now In The Past 6 Mths They Been In My Sleep Early In The Mornings
A MyEpilepsyTeam Member asked a question 💭

Due to my 1st son being stillborn in 2006 i began the seizures, never knew why, never had them before then. Now in the past 6-8 months ill only have maybe 1 a month but it comes early in the mornings while im asleep

A MyEpilepsyTeam Member

You may want to talk to your Neurologist or Epileptologist . You may need to have an a EEG and MRI . You may have another area in your brain that your seizures are located .

I had a a EEG and MRI… read more

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

When You Were Told That Medication To Assist You, Did You Choose Surgery Or Alternative Solutions? How Well Did It Work For You?
A MyEpilepsyTeam Member asked a question 💭

I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.

If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more

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Taking Bloods
A MyEpilepsyTeam Member asked a question 💭

Especially for my UK friends but all contributions welcome.How often found you have bloods taken & what do the GPs ask for?. Liver function ? ,Levels of AEDs, ? I've never had mine taken regularly The GP thinks the Epilepsy Unit takes bloods( it doesn't , purely a consultation) & the Unit thinks the GP does .I think I may have to ask for them myself

A MyEpilepsyTeam Member

My GP does it once a year!

What Are The Chances Of You Child Having Epilepsy If You Have It?
A MyEpilepsyTeam Member asked a question 💭

Me and my partner are wanting to try for a baby but im a bit apprehensive as I don't want my baby to have epilepsy. I know it can be genetic but I am the first person (we know about) to have epilepsy in my family and doctors don't know how I got it. I would just like to know the odds because I dont think I would be able to watch my baby have sezuires seeing how scared I make my mum when it happens to me.

A MyEpilepsyTeam Member

I'm 64 I've got 3 grown up children who haven't any problems.( Apparently I had a first cousin who had major seizures in her teens which stopped when she got pregnant,( it was still very taboo back in… read more

VNS Experience?
A MyEpilepsyTeam Member asked a question 💭

I am having my VNS "installed", lol, on Monday. I am nervous. Does it hurt when you're recovering? I'll be put out for it, but I'm nervous about the pain when I wake up. Does it feel weird having this thing in your body? I'm not normally a worrier and I'm pretty tough. When delivering my babies, the doctor asked if I had nerve endings because I was smiling and laughing through the contractions and pushing, lol (without an epidural, I might add, proudly, haha). But I'm worried about the… read more

A MyEpilepsyTeam Member

I've had a VNS installed approximately three years ago. I've had to have the output increased approximately two years ago. I haven't had any problems with the VNS except the Doctor's evaluation that… read more

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I had more seizures in my 40's than any other time except my teens. The seizures I had in peri menapause were also more severe, causing a loss of memory and balance. It took weeks to get over each… read more

Weight Gain On Keppra
A MyEpilepsyTeam Member asked a question 💭

Has anyone experience a weight gain on @Keppra? I have gained almost 20 lbs in just 45 days. I also take Zoloft for depression and anxiety.

A MyEpilepsyTeam Member

Just the opposite for me however I'm not on zoloft. I'm on Buspar. Iv lost 40 lbs