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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Lamictal
A MyEpilepsyTeam Member asked a question 💭

Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.

A MyEpilepsyTeam Member

I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name

When You Are Taking The Medication
A MyEpilepsyTeam Member asked a question 💭

When you are asked to take medication in the Morning and Night when Label on the box, would you follow it to 12 Hours between taking it, or what would you think of Various time in the Morning and A Various time at Night? If you didn't have a set 12 Hour Period would you think people would have more Seizures, Because I use to work early at 6am up to Last February, but would take my Medication at 9pm for Night , so this would be over a 12 Hour Period.

A MyEpilepsyTeam Member

Lamictal, Frisium and Epilim Chrono

Weight And Diet
A MyEpilepsyTeam Member asked a question 💭

What foods and diet have people tried to reduce their weight and thus seizure rate? Has it been successful?

A MyEpilepsyTeam Member

Eat healthy and do what I do exercise like a machine. I maintain about 7% body fat and refuse to let my Epilepsy impact my training. I regularly have partial seizures running and just plough on. My… read more

Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

How Likely Is It That One Or Any Of My 3 Children Will Also Develop Epilepsy At Some Point?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

As Bryan explains, if you listen to his pod cast, there are a lot of reasons (unfortunately the most frequent is unknown) of why an individual of any age develops Epilepsy.

Not to mention, even if… read more

How Long Have U Had Ur Disorder
A MyEpilepsyTeam Member asked a question 💭

if anyone is free to chat i am here

A MyEpilepsyTeam Member

I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age

I Have A Question And Anyone Taking Or Has Or Is Having Any Experience With This Medication Any Advice Or And Answers Would Be Helpful
A MyEpilepsyTeam Member asked a question 💭

I have a apptment with my neroligest on the 13th of July and I need to know about a medication jam totally against as am a advocate for not taking this kinda meds. I have to find a medication to replace topomax and my only option as I've researched everything is Epidiolex and am totally against it because of my advocacy and stance anyone who's on it or has a option or can provide a answer anything would be greatly appreciated. Am on onifi and briviact along with topomax now and need something to… read more

A MyEpilepsyTeam Member

I agree, I've also been learning about myself and my condition, education has been the best medicication.

Which Of You Who Have Had Any Form Of Brain Surgery Would Not Do So If You Could Go Back In Time With The Knowledge You Have Now?
A MyEpilepsyTeam Member asked a question 💭

I know that a few of my friends have expressed that if that had known before they had their first brain surgery what they know now, then they never would have agreed to it. Who else feels this way? How many feel that the brain surgeries have improved your quality of life?

I am not going into this eventual trip to the seizure center with any intention of agreeing to a brain surgery until there is no other options. I believe because my neurologist is at least in his late 60s, that he is very… read more

A MyEpilepsyTeam Member

But the good thing for me is going through all the pain I became seizure free.

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

Epidiolex
A MyEpilepsyTeam Member asked a question 💭

Has anyone on here been using this?
I've found some research on it but I'd like to know peoples personal experiences?

A MyEpilepsyTeam Member

never heard of it is it a new medication ?