Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
That's right VeraBaker! Those that pray together stay together. When you put your trust in the Lord, all things work out for a married couple one way or another.
For those diagnosed later in life, how long did it take to overcome the sudden changes in your life? I was a total extrovert before seizures, always on the go. I never want to leave the house no because I'm scared of having a seizure in public or around friends most of which don't even know that I have them yet. The sudden change of not being able to drive has been very hard. It's been 13 months since I was diagnosed & I still feel completely isolated and cut off from the world outside my house… read more
I've lost most of my family and friends because of my condition!! But y'all and little few family and friends that I have in my life is worth living and fighting to get better if that's even possible… read more
Does anyone use a smart watch app to notify caregivers or family members of their seizures? I see there are a few available. The only approved watch is the Embrace 2. I am looking into using a smart watch with a app.
Thanks for the responses. All of the information is very informative. I guess the reason I would ever want someone alerted is if I'm alone or when I finally move back out of my parents house.
I have made a routine of taking my medications, however, when something disrupts that routine, I sometimes tend to forget to take my medication. How you found anything useful to help you remember take your medications?
Got a pill box to lay on my table, is a weeks supply at a time! Alarms on iPad and telephone come in handy! Thanks for asking
Those with epilepsy that had children what was your experience like? Did you have to be off your meds? Was it scary? I know I still have lots of time to worry and decide if I even want a family and Ik I can have the conversation with my doctor when the time comes but share your stories
I was switched to Zonisimide for my pregnancy and my baby was a healthy baby boy. He was 6 weeks early preemie but that could've been simply because he was excited to greet the world and surprise… read more
What do you do to remember to take meds when you take more than once a day!
I use Medisafe app to let Me know when it’s time
When I was working , I was only able to work 2nd and 3rd shifts. I was never able to wake up for early morning shifts. First time I tried to work the first shift , I was fired in 3 days , because I… read more
I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.
Some songs that I like:
#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more