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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

When We’re You Diagnosed?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I was six and a half and now I am sixty and a half. My husband has one primary interest-Don't overdo it.

Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too

How Do I Remember Things From Class?
A MyEpilepsyTeam Member asked a question 💭

So I'm going back to college. I start on August 11th. Here's my deal though. I've been in and out of college since I graduated in 2009 because of Epilepsy problems. I've gone to college three other times already. Also for three different things. Should have stayed with the same track I know but I'm indecisive and I get bored easily. First time I was at the community college, I was there for my AA but I had just found out that I had Epilepsy. My GPA started dropping near the end of a year and a… read more

A MyEpilepsyTeam Member

read it write it sign it and Record it there are exceptions for our disability take an ASL class once you learn to sign you will surprise yourself how much you remember you muight find a new calling

Side Effects On Certain Food With Your Medicines
A MyEpilepsyTeam Member asked a question 💭

Has anyone had side effects with certain foods, with your medications. Cause ever since I started taken lamitical I cant eat any of the spanish beans I used eat. Which is weird. It used to be fine when I ate spanish beans with rice but ever since I started taken lamitical for my seizures is that a side effect or no?

A MyEpilepsyTeam Member

I'm on that but I'm just getting immune to every medicine 😢 I wouldn't take Felbamate

Do You Guys Get Staring Seizures Or Ever Feel Like You Cant Focus??
A MyEpilepsyTeam Member asked a question 💭

Ive been having these for a while and when i was in school, home, etc., id get these things where i stare and cant reply to someone and cant focus. I kinda just zone out for 10-15 seconds. I dont know if thats normal for epilepsy patients or not because i always felt different because of this.

A MyEpilepsyTeam Member

I have a couple of vision issues
1. My absence seizures, where I go into a blank stare or look like I’m daydreaming.
2. I have blackouts and blur vision.

My last EEG study proved that my blackouts… read more

What Covid Shot Should A Person That's Epileptic Get
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Depends on what is available in your area and what your health service will offer at the time.

How Have You Dealt With Drs Who Don't Believe You Have Epilespy?
A MyEpilepsyTeam Member asked a question 💭

My PCP and my neuro eye doctor feel that I have epilepsy. However I just saw a doctor who does not believe I have epilepsy and tried to write it off as psychological when I know it is not. They did NOT suggest any realistic treatment. Is there medications for epilepsy stemming from PTSD if it is that hypothetically? Is there a way I could pursue "right to try" for an epilepsy medication to see if it helps her so we could figure out where the episodes are actually coming from? Is it possible for… read more

A MyEpilepsyTeam Member

I’d also point out it’s not clear the link with epilepsy and trauma, wether it’s uncovered more in diagnosis or wether more broadly parental neglect plays a role in developing the pathology.

We also… read more

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Has Anyone Been For A 24 Hour Eeg Scan? Is It Better Then A Normal Eeg Scan?
A MyEpilepsyTeam Member asked a question 💭

I am going for a 24 hour scan next week and I want to see if it will show me blanking out and being restless as the normal eeg shows my seizures but not to an extend on how long and so forth. Is this scan worth my while?

A MyEpilepsyTeam Member

I had those tests plus a digitrace for when your being at home