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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

Seizures
A MyEpilepsyTeam Member asked a question 💭

I am 57 with MS. I am mobile but still have some issues such as falling and dizziness. 2 weeks ago I had 3 seizures in 2 days. Have never had 1. Went to neuro and after tests declared my ms has caused epilepsy. Do you spend time alone? I find myself being afraid to be alone.

A MyEpilepsyTeam Member

Keppra is the medication I am on also.

Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too

How Do I Help Myself?
A MyEpilepsyTeam Member asked a question 💭

My body is now medication dependent. If i miss 1 med im having a seizure in 2 mins. They now have me on 2000 mg keppra and 1500 tegretol.

A MyEpilepsyTeam Member

Im on 5000mg Keppra, 50mg Toradal
10mg Lorazappam
50mg Baclofen
Iwent from not taking any. Pills then taking all these pills. I know what you are going through. Im goiing to ask my neurologist about… read more

How Do I Remember Things From Class?
A MyEpilepsyTeam Member asked a question 💭

So I'm going back to college. I start on August 11th. Here's my deal though. I've been in and out of college since I graduated in 2009 because of Epilepsy problems. I've gone to college three other times already. Also for three different things. Should have stayed with the same track I know but I'm indecisive and I get bored easily. First time I was at the community college, I was there for my AA but I had just found out that I had Epilepsy. My GPA started dropping near the end of a year and a… read more

A MyEpilepsyTeam Member

read it write it sign it and Record it there are exceptions for our disability take an ASL class once you learn to sign you will surprise yourself how much you remember you muight find a new calling

Side Effects On Certain Food With Your Medicines
A MyEpilepsyTeam Member asked a question 💭

Has anyone had side effects with certain foods, with your medications. Cause ever since I started taken lamitical I cant eat any of the spanish beans I used eat. Which is weird. It used to be fine when I ate spanish beans with rice but ever since I started taken lamitical for my seizures is that a side effect or no?

A MyEpilepsyTeam Member

I'm on that but I'm just getting immune to every medicine 😢 I wouldn't take Felbamate

I'm On Keppra 500 Mg X4 Am X4 Pm I See My Docton On Tuesday Is Anyone On Keppra With Another Med To Help Stop Seizures
A MyEpilepsyTeam Member asked a question 💭

I'm on Keppra 500 mg x4 am x4 pm I see my Docton on Tuesday is anyone on keppra with another med to help stop seizures

A MyEpilepsyTeam Member

I'm on 500 MG of Keppra an take 3 tablets by mouth twice a day
then i'm on 100 MG of Lamictal i take 2 1/2 tablets by mouth twice a day

Feeling Toxic
A MyEpilepsyTeam Member asked a question 💭

My dr just changed my meds again. He lowered my oxcarbazine from 1800 mg to 1200, still at 2000 keppra, and increased my vimpat to 200 mg from 100. My serum levels on my blood work has been at 34.9. Toxic level is 35. I feel so toxic. I wake up with my hands twitching, and im sick to my stomach. Is anyone else on this high of dose or feel this way?

A MyEpilepsyTeam Member

White voices ShonaHunter?

Keppra
A MyEpilepsyTeam Member asked a question 💭

Has anyone taking Keppra started at a lower dose and it worked, but eventually had to move to higher doses? Have you outgrown your dosage?

A MyEpilepsyTeam Member

No, but I am hoping if I continue to not have any more seizures that my doctor will lower my daily doses.