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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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What Songs Do You Listen To, To Cheer You Up?
A MyEpilepsyTeam Member asked a question 💭

I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.

A MyEpilepsyTeam Member

Some songs that I like:

#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more

What Are My Options?
A MyEpilepsyTeam Member asked a question 💭

I submitted a reasonable accommodation request on 10/18/22 asking that my job give me 12 hours off of work, specifically during the hours of 7pm to 7am, due to the fact that I must wake up at 6am to get my children ready for school. Also to see to it that I may get enough sleep, because the recommended amount of sleep for someone with my disability is 8-10 hours of continuous sleep per night. My boss agreed to accommodate my request for one week only: 10/31-11/05/22, even though I… read more

A MyEpilepsyTeam Member

Easier said than done. But you deserve better than them!!!!

Do Any Of You Work Odd Hours/nightshift? Does It Affect Your Epilepsy? How Do You Manage?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

When I was working , I was only able to work 2nd and 3rd shifts. I was never able to wake up for early morning shifts. First time I tried to work the first shift , I was fired in 3 days , because I… read more

Anyone Feel Defeated When They Have To Adjust Meds And Can't Drive?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No. I did lose the ability to drive b/c of complex partial seizures (new term used today after 2017 reclassification but you know what I mean) for about 3 yrs. But I'm driving again. So keep the… read more

Have Anyone Had Children During The Epilepsy Exspireince ? , Being Diagnosed Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

I am 25 years old , is scared to have children because of my disgnose , I need a little support ,

A MyEpilepsyTeam Member

I had two girls . One was 11 6 1/2 & the other was 10 lbs 6 Oz.

The oldest is pregnant with her first child and the youngest just finished 1 year of college. Yes I was on AEDs and the only issue… read more

Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

Have You Ever Been Accused Of Faking Epilepsy To Get Attention?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Not being believed is worse than a seizure. I hope your days are sunny and peaceful.

How Many Anti-seizure Medications Is Too Much To Take At Once?
A MyEpilepsyTeam Member asked a question 💭

Under some research I'm seeing that its suggested to have 2 at a time. My neurologist has me on 4 anti epileptic medications right now. Is that too much? Especially because they aren't working.

A MyEpilepsyTeam Member

It’s ok to be on more then one brand of meds. Just as long as the Dr. stays within the perimeter of your body weight and blood levels

Why Am I Blanking Out In The Middle Of Doing Things And When I Come To I Don't Remember What Happened All I Know Is Im On The Floor
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

There are 2 possibilities
1. You experiencing bad side effects of your medication(s)
2. You are actually having , some form of a seizure.

I too have blackouts. They are a type of seizure . I also… read more