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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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3D Movies
A MyEpilepsyTeam Member asked a question 💭

Anyone have seizure reactions to watching a 3D movie? I sure would like to watch Thor Love and Thunder in 3D but not sure if my brain will react. Thoughts please?

A MyEpilepsyTeam Member

I think the type of movies like being a stressful or comedy might have something different each time too!

What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Has Anyone Ever Heard Of Hereditary Seizures
A MyEpilepsyTeam Member asked a question 💭

I was diagnosed several years ago with grand mal seizures, except that an EEG wouldn't detect them while I was having them. Was diagnosed with hereditary seizures.Was wondering has anyone else heard of the term or something similar??

A MyEpilepsyTeam Member

What is 3D printing? My son is on 3000mg of Keppra but don't know if it's 3D printing?

Photosensitive Epilepsy
A MyEpilepsyTeam Member asked a question 💭

Does anyone here have Photosensitive epilepsy?
If so how were you tested and treated.

A MyEpilepsyTeam Member

Very!!

Epilepsy And Driving With Lights
A MyEpilepsyTeam Member asked a question 💭

For the past week when I have been driving home in the dark, I have become nauseas within 5 minutes of driving. I feel like I am going to pass out and overwhelmed with the headlights coming towards me. Does anyone else experience this?? It has been overwhelming for me lately and I am not sure if it has to due with my epilepsy. (Also, I have never had a seizure due to flashing lights.)

A MyEpilepsyTeam Member

My husband doesn't really understand . Sonit makes it hard

Severe Headache
A MyEpilepsyTeam Member asked a question 💭

My husband woke up with a severe headache this morning, so bad he was crying, never have seen him cry in pain before. Says it's like a crushing feeling in his head behind his left eye. Makes it hard to even function. Anyone experience anything like this?

A MyEpilepsyTeam Member

Yes all the time only thing I can do is put ice n lay down

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Vns Therapy
A MyEpilepsyTeam Member asked a question 💭

i want to know as much as possiable about it they r talking about doin this on my daughter

A MyEpilepsyTeam Member

I have a VNS also, I am not very organized so I don’t know where my 🧲 magnets have gone. The battery 🪫 in my VNS is dead 💀 right now. My neurologist recently told me there is a new and improved one… read more

Has Anyone Here Had The ECoG EEG?
A MyEpilepsyTeam Member asked a question 💭

I am set to have the ECoG Intracranial EEG(the grid on the surface of the brain), I have had the Depth Electrodes once. With my limited research it sounds that the depth electrodes were significantly easier... Just curious if someone could shine some light on what that whole process looks like and what I have to look forward too.

A MyEpilepsyTeam Member

Me 5 days

Just Wondering If Anyone Has Been On Cytoxan To Treat Autoimmune Disease Causing Epilepsy
A MyEpilepsyTeam Member asked a question 💭

I think im going mental these auras are worse im hearing things and translating them although its normal its like there in 3D mode

A MyEpilepsyTeam Member

Prayers for you , I don't know anything about it