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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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What Is Y’all’s Dream While Having Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

I live with epilepsy day after day and my dream is to be a video editor but there’s been another dream stopping from happening because of all these meds I’m going to attempt to try it anyways though by training myself for the Navy. I hope my body can take this dream. This is important.

A MyEpilepsyTeam Member

You can do anything please don't let this epilepsy ruin your life ... a gave up my jibs because of ot a regert it a was going to collapse once a week to learn my lifted a had 2 jobs 1 in a care… read more

Video EEG
A MyEpilepsyTeam Member asked a question 💭

I have to a video eeg done. I have watched some YouTube videos, but still have questions. Will they just stop all my medications as soon as i am in the hospital? Or what?

A MyEpilepsyTeam Member

It all depends on how long the EEGV is . For one day, they won’t do a thing with meds.

From 4 - 7 days they will decrease your meds little bit at a time everyday
They want to try and get as big of… read more

Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?







Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

A MyEpilepsyTeam Member asked a question 💭

Hi my son 7 has occipital lobe focal epilepsy he gets these headaches so days just 1 some days up to 4 could they be a seizure also only now and again his eye vision go black for seconds can anyone help also Tuesday my 5 year old girl was asleep next to me seized for first time 2 mins 15 mins recovering docs say as first seizure they wont do anything even though my boy 7 and their dad has epilepsy

A MyEpilepsyTeam Member

i think the family has seizures (also known as genetic seizures). my family has genetic celiac disease (attack the weakest link if i eat grains). it is stupid but the drs wont do anything to your girl… read more

I Have Right Temporal Lobe Epilepsy And I'm Currently On Vimpat. Anybody Out There Have Vivid Or Weird Dreams?
A MyEpilepsyTeam Member asked a question 💭

I have right temporal lobe (lesions on the right side)epilepsy and I'm currently on Vimpat. Anybody out there have vivid or weird dreams? Some of mine are extremely life like and some are weird enough that I probably would tell them to anybody. Some of them stick in my memory even when I wish they wouldn't.

A MyEpilepsyTeam Member

Vimpat was a horrible drug for . But when I was on Potiga , boy I was being throw 3-4 dreams a night. I was having dream, that seemed real, to nightmares, to very weird and unusual dreams.

Has Anyone Here Had The ECoG EEG?
A MyEpilepsyTeam Member asked a question 💭

I am set to have the ECoG Intracranial EEG(the grid on the surface of the brain), I have had the Depth Electrodes once. With my limited research it sounds that the depth electrodes were significantly easier... Just curious if someone could shine some light on what that whole process looks like and what I have to look forward too.

A MyEpilepsyTeam Member

Me 5 days

Medicine Reminder?
A MyEpilepsyTeam Member asked a question 💭

I take Levetiracetam and tomapax in the morning and at 6pm. I have my alarm is set for both times but sometimes I don't here the one in the morning or I take it and I'll forget that I did rather it's in the morning or afternoon. What I am asking is how do you keep track or what are you using to make sure you didn't forget?

Last of 313 replies sign up to view previous answers
A MyEpilepsyTeam Member

I now have a Nurse who is supposed to come in and set them up. I was running low on some that needed new Prescription Refills. Now I have everything I need. Am very capable of setting up meds. I have… read more

Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

For Those Who Have Grand Mal Seizures I'm On Keppra Does Missing One Dose Make You Have A Seizure
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Missing 1 no but if you keep missing your medication it will cause sezure I look at it medication good sleep water and less stress 😬 you have to put your self first