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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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A MyEpilepsyTeam Member asked a question 💭

Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.

A MyEpilepsyTeam Member

I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name

What Type Of Seizure Is This?
A MyEpilepsyTeam Member asked a question 💭

I no longer have these, but it used to be a common occurrence. I know there are many, many types of seizures but have never found one that fits what used to happen to me. Can anyone tell me what this is??

* It lasted an entire day. From the time I woke up until I went to bed at night. Usually about 13-16 hours. Was always fine the next day
* I was always conscious.
* Never extra tired.
* No twitches. No pain or even physical discomfort of any kind.
* Most people didn't know anything… read more

A MyEpilepsyTeam Member

I had left temporal seizures and grand Mal now I no longer have them since brain surgery.

Does Anyone Here Have Temporal Lobe Epilepsy ?
A MyEpilepsyTeam Member asked a question 💭

i have had epilepsy since 4 and i was recently diagnosed with temporal lobe epilepsy and my epilepsy specialist said that surgery might be a good option but i also have other types of epilepsy so i dont know if my other types would be affected not only that but i have a traumatic brain injury and acute encophalophaly

A MyEpilepsyTeam Member

I don’t blame You!

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I Have A Question And Anyone Taking Or Has Or Is Having Any Experience With This Medication Any Advice Or And Answers Would Be Helpful
A MyEpilepsyTeam Member asked a question 💭

I have a apptment with my neroligest on the 13th of July and I need to know about a medication jam totally against as am a advocate for not taking this kinda meds. I have to find a medication to replace topomax and my only option as I've researched everything is Epidiolex and am totally against it because of my advocacy and stance anyone who's on it or has a option or can provide a answer anything would be greatly appreciated. Am on onifi and briviact along with topomax now and need something to… read more

A MyEpilepsyTeam Member

I agree, I've also been learning about myself and my condition, education has been the best medicication.

Is It Possible For Seizures To Suddenly Change After Almost 50 Years?
A MyEpilepsyTeam Member asked a question 💭

In December 2021, I was driving along and suddenly felt, the best I can put it, a bit light headed which lasted only 2 or 3 seconds. The next thing I recall seeing was my vehicle about 1/4 mile down the road where I last recall being in contact with a light pole in a local restaurant parking lot with the air bag deployed and police & paramedics around me
Now in 49 years I have NEVER had a seizure in which I did not have a lengthy aura of the same pattern. Nothing changed in my life that I… read more

A MyEpilepsyTeam Member

All my life I've had terrible sezuires with auras and a horrible headache with extreme sensitivity to light and sound and I'd sleep for 10 to 12 hours after a sezuire and not eat or drink anything… read more

So Is It True No Alcohol With Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

I'm curious what the consensus is here

A MyEpilepsyTeam Member

49 years and 6 months ago, 2 grand mal in a row my neurologist said no alcohol. Dilantin for my seizures AA for my alcoholism. I also have limited coffee/caffeine my last grand mal was 15 years ago… read more

Can Convulsive Seizures Cause Long Term Skeletal Damage?
A MyEpilepsyTeam Member asked a question 💭

Summer of 2002 is when I had my worst seizure that led to my epilepsy diagnosis and becoming medicated long term. It was a fully convulsive seizure almost for a full 20+ minutes. Can a seizure of that magnitude cause long term bone structure damage? Now that I'm in my mid-50's a lot of shoulder and neck issues that just seem to linger and sometimes not much relief for. I still get random muscle jerking of my legs, mostly the right leg, and sometimes more rarely even a bit with the torso.

A MyEpilepsyTeam Member

A seizure that lasts that long is what happened to me 2 in 1 and a half hour. They can be dangerous .

What Are The Chances Of You Child Having Epilepsy If You Have It?
A MyEpilepsyTeam Member asked a question 💭

Me and my partner are wanting to try for a baby but im a bit apprehensive as I don't want my baby to have epilepsy. I know it can be genetic but I am the first person (we know about) to have epilepsy in my family and doctors don't know how I got it. I would just like to know the odds because I dont think I would be able to watch my baby have sezuires seeing how scared I make my mum when it happens to me.

A MyEpilepsyTeam Member

I'm 64 I've got 3 grown up children who haven't any problems.( Apparently I had a first cousin who had major seizures in her teens which stopped when she got pregnant,( it was still very taboo back in… read more

I Have Read About People Losing Loved Ones To Epilepsy Is It Epilepsy That Takes Them, Is It What Happens To Them During The Seizure.
A MyEpilepsyTeam Member asked a question 💭

My wife is living with epilepsy and I am so scared to death of losing her. I would like to know if there is anything we could do, or is it something that's inevitable?

A MyEpilepsyTeam Member

I would say when for some reason the seizures can not be controlled, no matter what they do

Does Shingles Vaccination Cause Seizures.
A MyEpilepsyTeam Member asked a question 💭

My wife had a Zostavax vaccine to prevent shingles and 14 hours later had grand mal seizure that lasted 20 minutes. The T8 joint in her back collapsed during the seizure. Never had a seizure before this, has had 3 since. We believe the Zostavax bought this on, has this happened to anybody else.

A MyEpilepsyTeam Member

Thanks, my wife was 70 when this happened,I believe that the comment on Encephalitic swelling maybe correct. I asked a Doctor his thoughts and he thought that was quite likely and the swelling has… read more