I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
Hi ya it s not easy working with epilepsy I take my hat off to all them that do like you say it s when you're I'll and having to take time off bless you never give up ☺️
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
Posts on Facebook claim herbs cured her of epilepsy Not even a member then profile also has posts to other sites as cure for herpes, infection. Is there any way to get this off or warn others? Site says it's private w/16 members. Is there an alternative in the U.S. to get people real info or not. If Administration of MyEpilepsy site does not respond then I ll tell others must wipe it out.
I do know berries help with seizures especially the dark ones not saying stop taking meds though
I've got complex partial seizures with identified abnormality in my temporal lobe. Seizures are focal so my neurologist said surgery is an option I should consider, but I'm pretty scared and not sure it is worth it. My seizures aren't very bad and I could still lead a mostly-normal life but I plan to become a doctor and with sleep deprivation being a major trigger for me it may prevent me from pursuing my desire to work in a hospital (which means long hours). Im not sure about the process of… read more
Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more
I have focal eppilepsy. My speech is very impaired now. Vision is now double. Balance is impaired. Meds ia now toplep 300mg a day and epitec 200mg a day split in half morning and night.
Over the last 3 weeks my speech and vision as well as balance has started going. My fits have increased significantly. I am suffering feom chest pain as well. Muscular i canntouch. This I cant.
The neuro has kept up with the diary has to be submitted in a few weeks.
Please sgare your expieriences with me. Is… read more
I hear you @A MyEpilepsyTeam Member. I get side-effects from my medication too. I am on 4 different AEDs(one of them is in 2 strengths)which makes it worse. They tend to say ‘the more AEDs you are… read more
I’m really happy that Tampa Bay Bucs made it. They’re playing home against Dallas Cowboys Monday night!
I wish I could say something but my husband is a football official (he is an umpire). Both he and. I would be in so much trouble if it was found that he made a prejudiced statement. So enjoy the… read more
I'm going to have the RNS implant in March. And all I want to know is has anyone else had it done and dose it work . I go in March to Vanderbilt medical center in Nashville Tennessee.