When did you get it?
Diagnosed 1992 I think winter. Oh wait nope summer.
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more
According to my research Clonazepam/Klonopin was first approved by the US Food and Drug Administration in 1976. This approval means that it will be available from pharmaceutical companies in a… read more
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
Ok I know this sounds more like something for dear Abby but...I have 2 children ages 12 and 9. My husband has been threatening to leave since we got married. (11 years ago) He says he could do better. He should've left a long time ago. I'm the reason he has no friends. Umm... the only thing my children are going to remember of me is how much I sleep (Combo of working full time and tons of meds). Etc. He has said if we get divorced he'd take full custody of the kids because I have epilepsy so I'm… read more
I was married for 17 years before my wife left me and divorced me after cheating on me 3 times and she knew about my epilepsy and sezuire disorder when we were dating for 3 years. My best friends… read more
I was wondering when you seek a second or third opinion from a doctor do you tell ,share include all your diagnosis from previous doctors, neurologist .
Should that information be included?
would those previous diagnosis or medical opinions affect the opinion of the new doctor your seeing?
That's what my concern is really is that they will just agree with previous diagnosis.
I have a neurologist of whom I am not fond. However, she is in practice with a man I do like. Is there a gracious way to say I would prefer to see this doctor?
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
i want to know as much as possiable about it they r talking about doin this on my daughter
It's happened quite a few times at bedtime most recently last night, i feel heavy and disconnected but also like my body is moving around, my eyes quickly moving around...
After my right lobe craniotomy on 12-16-2020 being a constant burden on my family unable to help out, drive or work had a couple of trips via ambulance to the ER. Seen for: 8/2/2021
Pseudo seizures &… read more