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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Overwhelmingly Sleepy
A MyEpilepsyTeam Member asked a question 💭

I have days where I have to really fight to stay awake. It's next to impossible to keep my eyes open.
I've been tested for a lot of things; but so far no answers.
Yesterday I underwent a Doppler ultrasound of my carotid arteries. (I'll have to wait several days for the results.)
Has anyone else experienced such sleepiness?

A MyEpilepsyTeam Member

Sometimes I sleep well at night. Other times ( like last night)
I don’t sleep at all. It varies.

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Uncontrolled Seizures And Job
A MyEpilepsyTeam Member asked a question 💭

Does anyone with uncontrolled seizures work at a job ? And if so doing what ? I have held 4 jobs in my life running heavy equipment , welding , a prison guard and my last one when epilipsey hit I was a Rig Manger for Nabors. I'm on disablity now but man do they give me a hard time I have looked but getting back and forth and my job experience I can no longer do any of that. I'm 41 Thanks

A MyEpilepsyTeam Member

I have worked 11 years as a janitor don’t know if I had more than one for sure or not because it was just me dumping trash and sometimes would get yelled at for skipping spaces but when I thought I… read more

How To Improve Your Memory Recall?
A MyEpilepsyTeam Member asked a question 💭

In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more

A MyEpilepsyTeam Member

According to my research Clonazepam/Klonopin was first approved by the US Food and Drug Administration in 1976. This approval means that it will be available from pharmaceutical companies in a… read more

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Left Temporal Lobe Surgery
A MyEpilepsyTeam Member asked a question 💭

My son is set to have left temporal lobectomy on September 28 2018. I am wanting to talk to people who have had this done and your experiences. We are very nervous.

A MyEpilepsyTeam Member

I had this surgery in 2000. I have issues with processing information, lower stress tolerance, impulsivity, and light and noise sensitivity. I also have additional memory problems that cause confusion… read more

Anyone Have A Goal But Can’t Complete Lack Of Motivation?
A MyEpilepsyTeam Member asked a question 💭

I’ve been trying to lose weight for 2 years now probably 3-4 honestly but losing pounds is definitely a challenge and building motivation is hard so usually I just listen to Motivational Music or something that describes a fight in a song. What do y’all do for more motivation? When you want to change.

A MyEpilepsyTeam Member

If you make a god of the medical field be careful! I learned about minds many working in the field. You so learn the great people and those who are still learning and admit to it! Those who don’t make… read more

Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

Need Advice On How To Deal With 28 Yr Old Son And Wanting A Girlfriend
A MyEpilepsyTeam Member asked a question 💭

My son is 28 with uncontrolled seizures since 8 months old,brain damage and operates on about a 10 yr old level. But he knows that men and women have sex,kind of knows what sex is and wants a girlfriend, so he can feel sex(his words). He does not go anywhere socially, we live in a small town and I just dont know how to handle this. Every day he asks me to find him a girlfriend. Help, what should I do?

A MyEpilepsyTeam Member

My son is 21. He has a severe seizure disorder which has left him at about age 10-12 also. He knows that adults should have buddies, girlfriends jobs etc. But he can't go out and find these things on… read more

Other Reasons Symptoms Occur?
A MyEpilepsyTeam Member asked a question 💭

I've had most of these side effects that can be related to epilepsy meds but if your female they can occur during the menopause, depending on your age .

A MyEpilepsyTeam Member

Hi, I understand what you mean about hormone levels cause I have been through the symptoms, take care.