A while back, I had a seizure that caused me to fall on my face and damage my top front teeth. It took sone time, but they’re finally fixed! My dentists and dental assistant are worried about me damaging my teeth again so they made me a custom fit dental guard. The guard is supposed to protect my teeth from grinding as well.They said the guard is optional and that I could wear it for a few hours in the day or in the night while I sleep. However, they keep highly recommending I wear it.… read more
A number of years ago my old dentist 🦷 suggested that I get some braces. First a retainer, that metal was pressing against my gums too much and really hurt. Then things were attached to my back… read more
Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
The light may not exactly flash but it moves along the side, front to back, of your peripheral vision in one of your eyes. Also, does anybody else get it when you change to light or darker settings? For example, If you walked from a brighter to a darker section of a room, or if a large piece of hair suddenly falls near your eyes and blocks light.
I used to see different colors in my left peripheral before my brain surgery took away peripheral vision
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
When did you get it?
Diagnosed 1992 I think winter. Oh wait nope summer.
Good way to help yourself. Like it.
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
Has anyone gotten the vaccine? Do you feel it has made seizures worse? Have any of y'all heard of shedding? I know it's a touchy subject for a lot of people. Personally I am NOT vaxxed, nor will I be getting it. I am surrounded by people that are.
I feel the same way no I don't believe in getting vaccinated, especially when we have other things going on in our system that has to do with seizures this order by getting and being vaccinated it can… read more