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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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About Flashback Problem
A MyEpilepsyTeam Member asked a question 💭

I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first

A MyEpilepsyTeam Member

Hum

I'm Being Asked If I Want To Be Induced At 39 Weeks Pregnancy Is This Normal?
A MyEpilepsyTeam Member asked a question 💭

Im currently 33 weeks pregnant and have very mild seizures (petite mal) which I've been having around 1 a week.
I've been asking to think about being induced at 39 weeks due to me being epileptic but can't see any evidence that this is normal. Has anyone else had this?
Thanks

A MyEpilepsyTeam Member

When I was pregnant I was induced once out of 5 pregnancies my first only because i had preeclampsia if you have that your dictors concerned if not you will be fine pregnancy is a stresser but to make… read more

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

How To Improve Your Memory Recall?
A MyEpilepsyTeam Member asked a question 💭

In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more

A MyEpilepsyTeam Member

I wouldn't know, Besides Diagnozed with 4 forms of Epilepsy since 1982 to the year 2000, also had 1 new type of Seizures with Full Amnesia that Lasted 3 days long every single time I had Prescription… read more

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Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

Best Dating Sites On The Net For People With Epilepsy.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

That's right VeraBaker! Those that pray together stay together. When you put your trust in the Lord, all things work out for a married couple one way or another.

Prevergen, Neurvive, Potassium? Thoughts, Experience? I Didn't See Any Of Those Mentioned In The Vitamins, Minerals, Supplements Chain
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

My siezure RX depletes my body of Magnesium Oxide. I was having severe cramping muscles. I also am B12 deficient. Other blood levels good. Hope Mum is feeling better! GOD BLESS!

Has Anyone Ever Experienced Fluid Retention While Taking Keppra?
A MyEpilepsyTeam Member asked a question 💭

I've been taking Keppra for almost 8 years now and off and on I've experienced unsightly fluid retention in the legs and stomach. I've never thought to associate the two previously but in the warmer months it gets pretty bad.

I was just wondering if anyone else has experienced something similar while taking Keppra or perhaps I just have a predisposition to fluid retention....

If you have experienced it how have you managed it?

A MyEpilepsyTeam Member

My son was put on keppra and he gained 20 kilos in one year. His stomach has remained bloated even though he’s off keppra. It was devastating for him and compromised his mobility

Vns Therapy
A MyEpilepsyTeam Member asked a question 💭

i want to know as much as possiable about it they r talking about doin this on my daughter

A MyEpilepsyTeam Member

I have a VNS also, I am not very organized so I don’t know where my 🧲 magnets have gone. The battery 🪫 in my VNS is dead 💀 right now. My neurologist recently told me there is a new and improved one… read more