I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
Just seen the nerologist last Thurs Jan 2023.My Nerologist, She doesn't want anyone elses scans or tests. When I've already have had abnormal EEGs plus video EEG. MRI & Cat scans are all normal tho. Anyhow my Nerologist,She wants to do all her own
Workup. Is this normal?
Cause none of my sons Nerologists have did same testing they always went to next step/testing. He was finally diagnosed 2022 Generalized epilepsy after yrs (started when 14 yrs, now 25) of having them and being on meds.
But my offer is no joke. I make it not in jest. But I'm all seriousness
https://podcasts.apple.com/us/podcast/this-podc...(Phone number can only be seen by MyEpilepsyTeam users)?i(Phone number can only be seen by MyEpilepsyTeam users)
My sleep doctor put me on it because I was literally getting zero sleep for a month due to seizure activity and gabapentin making my brain feel on fire. My neurologist wants me off it because it’s “just a tranqualizer and causes memory issues”. I’ve been on .5 for a month and have slept beautifully. I don’t have an addictive personality and really would like to stay on it because im enjoying sleep, but am worried about long term.
I've taken it for 13 years.im getting weened off it(slowly) it makes me so tired
Anyone take vimpat and have a healthy pregnancy/no issues conceiving? I take 200 mg twice daily. My doctor says everything will be ok but just looking for real experiences. Thanks :)
Thank you that’s super helpful :)
I have took vimpat since I was a teenager and I don’t have any side affects with me and it helps me to help seizures but I am sure it helps with my other meds to.
I was diagnosed earlier this week (2-14-2023) with ostopenia in my left leg and hip. I am concerned that this condition may be a side effect of the Dilantin/phenytoin that I take. I'm wondering if I should switch to another seizure med. I know you're not doctors but has anybody else encountered this problem? What action was taken by you and your doctors?
PS I know ostopenia isn't reversible. I'd just like to perhaps lessen the ongoing damage.
Thanks in advance.
Physical Therapy is strenuous. I came home and took a 3 or 4 hour nap...lost track.
3lb ankle weights are a lot for this skinny body. When they work me up to 5lbs I don't know how I'll do.
How many people still manage to still work full time and have breakthrough seizures?
I worked 6 days a week 50/hrs wk. for 35 years. I had worked in a lumberyard. I started working outside making houseloads of lumber. Very physical labor. I moved into customer service, less physical… read more
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
Raylene, There are two-2-types of Disability that Social Security issues they are: SSI and SSDI . Be certain that you get the type of Disability that you are qualified to receive. SSI only gives… read more