Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
As a child, I took Phenobarbital at night, and Tridione in the daytime. Anyone else heard of this? My new Dr.'s give me funny looks, but I know what I was taking. I was 17 when I stopped taking it.
I take 145 mg of phenobarbital.
116 at night
On it 29 years
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
How come every time I start a new job within the first 1 to 3 days I start having multiple focal seizures and it affects my work but when I am home not working it will be fine my focal seizures will be gone
The stress ï now have too much in my mind. Take it one day at a time
My neurologist wants to put me on EPIDIOLEX. Does anybody have any experience with this medication. I would love to hear your reviews and experiences. Good or bad.
@Churcham. I can tell you from professional experience (14 years doing interlibrary loan work for Massachusetts General Hospital--and getting at least article, chapter, book, etc. request filled for… read more
Sorry for this question but do any men find they have a reduced sex drive because of the medication they are on which is affecting their relationship with their long term partner?
Never had that problem growing up even with ep or when got married and still dont but now Loving on wife is over as wife passed from cancer unless get married as lonely now
I am 25 years old , is scared to have children because of my disgnose , I need a little support ,
I had two girls . One was 11 6 1/2 & the other was 10 lbs 6 Oz.
The oldest is pregnant with her first child and the youngest just finished 1 year of college. Yes I was on AEDs and the only issue… read more
Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.
I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name
I have had epilepsy since I was 14 and I haven’t had a grand mal for about four years, I now just have partial seizures, but I was taking a nap when the big seizure happened and all I remember was waking up in the hospital. Ever since then every time I have partial seizures I am always scared to sleep because I’m scared I’m going to wake up in the hospital again. This week was especially rough with my epilepsy, I was unable to work for four days due to the ways my partial seizures affected me… read more
Just explain that the Rosmary and other essential oils are not helpful, that it is in fact doing harm. How old is he?
I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?
I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too