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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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Left Temporal Lobe Surgery
A MyEpilepsyTeam Member asked a question 💭

My son is set to have left temporal lobectomy on September 28 2018. I am wanting to talk to people who have had this done and your experiences. We are very nervous.

A MyEpilepsyTeam Member

I had this surgery in 2000. I have issues with processing information, lower stress tolerance, impulsivity, and light and noise sensitivity. I also have additional memory problems that cause confusion… read more

Having Children
A MyEpilepsyTeam Member asked a question 💭

Hello,

Me and my boyfriend are thinking about having a baby in the future. I have a generalized form of epilespy that is controlled, but I will be on medicine for the remainder of my life. My doctor says I can't be on my meds while pragnaet and I guess I want to hear stories about what this has been like for other people

A MyEpilepsyTeam Member

Hope this helps

Anyone Have A Goal But Can’t Complete Lack Of Motivation?
A MyEpilepsyTeam Member asked a question 💭

I’ve been trying to lose weight for 2 years now probably 3-4 honestly but losing pounds is definitely a challenge and building motivation is hard so usually I just listen to Motivational Music or something that describes a fight in a song. What do y’all do for more motivation? When you want to change.

A MyEpilepsyTeam Member

If you make a god of the medical field be careful! I learned about minds many working in the field. You so learn the great people and those who are still learning and admit to it! Those who don’t make… read more

Is There Hope?
A MyEpilepsyTeam Member asked a question 💭

My son is 19, just recently been diagnosed with generalised epilepsy after 1 1hr EEG. His first tonic clonic was on Dec 28, second one 2 days ago. They did his bloods in hospital and said his epilim level was quite low. Could that be why he had the tc? Will my son ever lead a happy life. As his mother im really struggling.

A MyEpilepsyTeam Member

Like what other people have said I'm sure Your son will live a normal happy life. My guess is he will be able to go to college if he wants to. It may be hard, but people with epilepsy are smart… read more

Was Anyone On Topamax During Pregnancy?
A MyEpilepsyTeam Member asked a question 💭

My specialist has said I can now try for a baby! But i have a few risks cause I’m on 3 medication. 2 are safe but he says the topamax can be a risk...

A MyEpilepsyTeam Member

I had taken Topamax durring my pregnancy. Was fallowed closely by medical specialists for a “high risk pregnancy”. My child was born at 28 weeks with a severely low birth weight. The last few weeks… read more

Teaching And Epilepsy
A MyEpilepsyTeam Member asked a question 💭

I'm training to be a teacher and I was wondering if anyone is a teacher and has epilepsy? Is it difficult to manage your epilepsy and your job?

A MyEpilepsyTeam Member

Jono
I know exactly how you feel! All of my seizures have happened in the morning, and that makes me nervous since I'm at school early in the morning. I hope everything goes well with your teacher… read more

Can Someone Put This In Lay Terms, About Life Expectancy?
A MyEpilepsyTeam Member asked a question 💭

Article: https://pubmed.ncbi.nlm.nih.gov/15371287

"Reduction in life expectancy can be up to 2 years for people with a diagnosis of idiopathic/cryptogenic epilepsy, and the reduction can be up to 10 years in people with symptomatic epilepsy. Reductions in life expectancy are highest at the time of diagnosis and diminish with time. Our model provides broad estimates, but it appears that the higher mortality rates in people with newly diagnosed epilepsy translate into decreased life expectancy."

A MyEpilepsyTeam Member

You can’t really say when you go to heaven. That’s God’s choice so I don’t believe that stuff about life expectancy with seizures

Is Anyone Taking Fycompa? What’s Been Your Experience Like? Thank You.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Absolutely terrible drug. my neurologist added fycompa (8mg) into my medication mix 2 years ago and nothing but trouble with it since. It made my depression much worse, gave me horrible mood swings… read more

What Do People Do For Anxiety Instead Of Meds? In Example Breathing Control.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Good way to help yourself. Like it.

Learn About Epiepsy
A MyEpilepsyTeam Member asked a question 💭

Evanescence Atrium
Published on Feb 28, 2010
Video explaining what is epilepsy and what to do when someone has a seizure.
Category
Music
License
Standard YouTube License

https://youtu.be/UHAoSMUxATA