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Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

Lamictal
A MyEpilepsyTeam Member asked a question 💭

Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.

A MyEpilepsyTeam Member

I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name

How To Improve Your Memory Recall?
A MyEpilepsyTeam Member asked a question 💭

In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more

A MyEpilepsyTeam Member

Ahh ok I was just wondering. Thank you Marilee.

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Has Anyone Experienced A Significant Increase In Frequency And Severity Of Seizures With Perimenopause?
A MyEpilepsyTeam Member asked a question 💭

I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!

A MyEpilepsyTeam Member

I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

What Is Your New Years Resolution(s)?
A MyEpilepsyTeam Member asked a question 💭

my new years resolution is to to be healthyer. just wondering what is your new years resolution(s)?

A MyEpilepsyTeam Member

MarleneFerraro: thank you and good luck to you as well! i always have a list of things i'm working towards. Sometimes i dont hit the goal by the time i set it so i reevaluate and adjust what i need to… read more

Nerologist Running Own Test Not Asking For What Has Already Been Done
A MyEpilepsyTeam Member asked a question 💭

Just seen the nerologist last Thurs Jan 2023.My Nerologist, She doesn't want anyone elses scans or tests. When I've already have had abnormal EEGs plus video EEG. MRI & Cat scans are all normal tho. Anyhow my Nerologist,She wants to do all her own
Workup. Is this normal?
Cause none of my sons Nerologists have did same testing they always went to next step/testing. He was finally diagnosed 2022 Generalized epilepsy after yrs (started when 14 yrs, now 25) of having them and being on meds.

A MyEpilepsyTeam Member

But my offer is no joke. I make it not in jest. But I'm all seriousness

How Long Have You Had Seizures?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Since 2012

Has Anyone Else Been Diagnosed W/ Mild Diffuse Encephalopathy? What Is It?
A MyEpilepsyTeam Member asked a question 💭

I haven’t seen my neurologist since getting this diagnosis added to my ever increasing list of epilepsy complications. Showed up after my recent inpatient video EEG (6 of them) 4 in ICU. I’m 51. Am I now having dementia??!?!

A MyEpilepsyTeam Member

I do not know

How Long Have U Had Ur Disorder
A MyEpilepsyTeam Member asked a question 💭

if anyone is free to chat i am here

A MyEpilepsyTeam Member

I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age