I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
When did you get it?
Diagnosed 1992 I think winter. Oh wait nope summer.
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
i want to know as much as possiable about it they r talking about doin this on my daughter
Any positive information on Epidiolex as the only meds? Currently on Zonagran. I'm reading and so many bad side effects. We asked our doctor to switch
Had a abnormal 24 EEG 1 month ago and in 2019,but not the cleavland clinic wants a 3 day EEG, I wish the shared data more . We have a functional doctor appointment and generics appointment. I'm my son's voice until he finds it and if takes fighting for his rights and researching like a scientist, then must be done.
JDelakit Understand concern bout meds sides but look at some ads for over-counter meds on TV. Side effects galore.The 3 day testing is fantastic not bad if you want to know why this will give you… read more
Sleeping or watching tv
1. Lack of sleep
2. Strobe lights
3. Blowing on a windmill
My least favorite part of an EEG was having the electrodes implanted directly into my scalp. Then I was told to relax!
I was wondering when you seek a second or third opinion from a doctor do you tell ,share include all your diagnosis from previous doctors, neurologist .
Should that information be included?
would those previous diagnosis or medical opinions affect the opinion of the new doctor your seeing?
That's what my concern is really is that they will just agree with previous diagnosis.
I have a neurologist of whom I am not fond. However, she is in practice with a man I do like. Is there a gracious way to say I would prefer to see this doctor?
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
Ok I know this sounds more like something for dear Abby but...I have 2 children ages 12 and 9. My husband has been threatening to leave since we got married. (11 years ago) He says he could do better. He should've left a long time ago. I'm the reason he has no friends. Umm... the only thing my children are going to remember of me is how much I sleep (Combo of working full time and tons of meds). Etc. He has said if we get divorced he'd take full custody of the kids because I have epilepsy so I'm… read more
I was married for 17 years before my wife left me and divorced me after cheating on me 3 times and she knew about my epilepsy and sezuire disorder when we were dating for 3 years. My best friends… read more