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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Anyone Having Positive Results Microdosing?
A MyEpilepsyTeam Member asked a question 💭

I have Tonic-Clonic seizures every 2 weeks. I'm 51 and have been having them for 10 years now.
I started microdosing 3/10s of a gram and I still had my seizure every 2 weeks, but I went 4 months without a Tonic-Clonic seizure. https://www.magicmushrooms101.com
https://www.magicmushrooms101.com/shrooms-and-e...

A MyEpilepsyTeam Member

The past year ive been thinking of doing it. Im glad to hear it has sone kind of a positive affect and hope it gets even better for you 😊

What Do People Do For Anxiety Instead Of Meds? In Example Breathing Control.
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

Good way to help yourself. Like it.

Does Anyone Use The Watches That Help Detect Seizures? Are There Certain Things You Need To Take It Off To Do So It Doesn't Set Off.
A MyEpilepsyTeam Member asked a question 💭

Will it set off with excessive motion.

A MyEpilepsyTeam Member

I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more

Video EEG
A MyEpilepsyTeam Member asked a question 💭

I have to a video eeg done. I have watched some YouTube videos, but still have questions. Will they just stop all my medications as soon as i am in the hospital? Or what?

A MyEpilepsyTeam Member

It all depends on how long the EEGV is . For one day, they won’t do a thing with meds.

From 4 - 7 days they will decrease your meds little bit at a time everyday
They want to try and get as big of… read more

Teaching And Epilepsy
A MyEpilepsyTeam Member asked a question 💭

I'm training to be a teacher and I was wondering if anyone is a teacher and has epilepsy? Is it difficult to manage your epilepsy and your job?

A MyEpilepsyTeam Member

Jono
I know exactly how you feel! All of my seizures have happened in the morning, and that makes me nervous since I'm at school early in the morning. I hope everything goes well with your teacher… read more

Has Anyone Heard Of Pseudo Seizures?
A MyEpilepsyTeam Member asked a question 💭

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

A MyEpilepsyTeam Member

I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too

What Is Anyone's Oldest Memory.
A MyEpilepsyTeam Member asked a question 💭

I was asked this tonight. Because of my birthdate. They said they remember the liberty train 🚂 and I should remember something that can mark around what my possible age could be. Ok so my oldest memory is Reagan getting shot. I think eighties. Don't really help. Everything I find says my birthday mid to early 70's

A MyEpilepsyTeam Member

Don't then good stuff Katie good stuff. Forgive them. Let Jesus heal you. Good stuff. Don't need the bad. Give him the bad.

Lamotrogine Side Effects
A MyEpilepsyTeam Member asked a question 💭

I had been on Lamotrogine 100mg for 6 months, only side effect was insomnia. I was still having partial seizures.
I have been on 150mg of Lamotrogine now for the past 4 days and am suffering extreme headaches, nausea and falling into deep sleeps with crazy busy dreams and occasional jerks.
Not sure why the side effects have changed so drastically with such a small change in dosage (I have to try it for 2 weeks).
Has anyone experienced this or have any advice?

A MyEpilepsyTeam Member

I am on 300mg lamotrigine 2X day, and I can say I still experience the imbalance, the deep sleep, the weird dreams (although I rarely remember them), vision problems and the difficulty with balance… read more

Smart Watch Apps Vs. Embrace 2
A MyEpilepsyTeam Member asked a question 💭

Hi all. My son recently started seizing (grand mal) again after 4 years of being seizure free. I’m looking to buy him a seizure alert device but wanted to know if anyone has any experience with them. I’m currently looking at My Medic Watch App which connects to a smartphone or the Embrace 2 Watch. Are there any other options out there? Your insight is much appreciated.

A MyEpilepsyTeam Member

Hi Becky. My son started having absent seizures when he was 7. At age 15 he suffered from his first grand mal (this happened after his father’s funeral. He died from congestive heart failure)… read more