Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
It's happened quite a few times at bedtime most recently last night, i feel heavy and disconnected but also like my body is moving around, my eyes quickly moving around...
After my right lobe craniotomy on 12-16-2020 being a constant burden on my family unable to help out, drive or work had a couple of trips via ambulance to the ER. Seen for: 8/2/2021
Pseudo seizures &… read more
Like your always taking another pill….
I've always been glad we have them to help! From day one 50yrs ago happy to live in a time that we know how to control seizures. Imagine if we didn't have
our meds what shape we'd be in.
My potassium was below a 3 when I 2 back to back. I'm now on 10 Meq's which is 8 pills a day.
I asked a similar question I have had low potassium after seizures. And even prescriptions now given to me.
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.
Some songs that I like:
#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more
Something some said got to me. Not all forms of epilepsy make tou loose consciensness. I am always alart and and aware of several of my triggers. My sezuires are either absent, mind staring or simple/conplex jerks (like a cold chill).
I have complex partial seizures. My neurologist and I have talked about my license as I have brought it up. He sees no reason to revoke my license and my diagnosis does not require them to be.
Anyone else still have their license?
I still have mine but I'm not allowed to drive for 6 months after I've had a sz. Just had a major one that sent me to the hospital and required stitches above my right eye.
I am 25 years old , is scared to have children because of my disgnose , I need a little support ,
I had two girls . One was 11 6 1/2 & the other was 10 lbs 6 Oz.
The oldest is pregnant with her first child and the youngest just finished 1 year of college. Yes I was on AEDs and the only issue… read more
Due to my 1st son being stillborn in 2006 i began the seizures, never knew why, never had them before then. Now in the past 6-8 months ill only have maybe 1 a month but it comes early in the mornings while im asleep
You may want to talk to your Neurologist or Epileptologist . You may need to have an a EEG and MRI . You may have another area in your brain that your seizures are located .
I had a a EEG and MRI… read more
Hello! I could not find any answers to this topic. Do you all find that you generally need more sleep than others? I know everyone is different, but I find that I usually need 8+hours of sleep daily. I am very diligent about getting enough sleep as that is one of my main triggers. On the weekends, I can easily sleep for 9+ hours. Is anyone else like this?
I would say yes, I’m the same way in that I need about 8 hours on a regular schedule in order to function normally, and without it I’ve been more prone to seizures. But I purposely plan and keep to… read more