Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
It's happened quite a few times at bedtime most recently last night, i feel heavy and disconnected but also like my body is moving around, my eyes quickly moving around...
After my right lobe craniotomy on 12-16-2020 being a constant burden on my family unable to help out, drive or work had a couple of trips via ambulance to the ER. Seen for: 8/2/2021
Pseudo seizures &… read more
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
i want to know as much as possiable about it they r talking about doin this on my daughter
Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
I was wondering ,does your neurologist do follow up MRI?if so what's the frequency?
It's been 2 years since my last MRI and I would like to know if my Archonoid cyst has grown during that time as my symptoms have progressively gotten worse and I still have concerns That it may be the cause of my symptoms amongst other reasons.
MRI will depend on your Doctor. And what information he/she is looking for. A lot of times for myself , my Epileptologist would schedule me a MRI appt., followed by a EEG or the Other way around. Then… read more
I am 25 years old , is scared to have children because of my disgnose , I need a little support ,
I had two girls . One was 11 6 1/2 & the other was 10 lbs 6 Oz.
The oldest is pregnant with her first child and the youngest just finished 1 year of college. Yes I was on AEDs and the only issue… read more
Do you guys drive?
Losing the right or ability to drive is not only hard it just down right sucks! It is a means to independence. I haven’t driven in almost 9 years and I hate every minute. Having said that I look at… read more