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How Long Have U Had Ur Disorder
A MyEpilepsyTeam Member asked a question 💭

if anyone is free to chat i am here

A MyEpilepsyTeam Member

I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age

What Songs Do You Listen To, To Cheer You Up?
A MyEpilepsyTeam Member asked a question 💭

I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.

A MyEpilepsyTeam Member

Some songs that I like:

#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more

Does Anyone Have Any Seizures That Present Similar To A Panick Attack? What About Before An Episode/after One?
A MyEpilepsyTeam Member asked a question 💭

It's happened quite a few times at bedtime most recently last night, i feel heavy and disconnected but also like my body is moving around, my eyes quickly moving around...

A MyEpilepsyTeam Member

After my right lobe craniotomy on 12-16-2020 being a constant burden on my family unable to help out, drive or work had a couple of trips via ambulance to the ER. Seen for: 8/2/2021
Pseudo seizures &… read more

What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?







Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

Brain Resection
A MyEpilepsyTeam Member asked a question 💭

Has anyone had part of their brain removed to help reduce/stop seizures? Thats what the docs recommen me try now(i already had laser ablation 2 yrs ago) Did you notice any negative changes/side effects post surgery? Good outcomes? What can i expect?

A MyEpilepsyTeam Member

It’s different for everyone. It didn’t work for my ex-fiancé . So I would recommend and RNS or a VNS . I have a VNS

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Can I Breastfeed On Zonisamide And Lamotrigine
A MyEpilepsyTeam Member asked a question 💭

I am on 800 mg zonisamide 800mg lamotrigine and 200 mg briviact can i breastfeed j took all lf thest pills my whole pregnacy and he was born the 28th healthy as can be but all the docters tell me somthing different.

A MyEpilepsyTeam Member

I would check the side effects to see if they do anything to your milk and if it would effect the baby Mdube

Vimpat Alternative
A MyEpilepsyTeam Member asked a question 💭

I have been on Vimpat for 9 years, but just lost my job and the stellar insurance that came with it. My copay will go from $60 for a three month supply to $500 for a one month supply. Anyone have any recommendations or know of medications similar to Vimpat?

A MyEpilepsyTeam Member

Good luck!!! 😉

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more

About Flashback Problem
A MyEpilepsyTeam Member asked a question 💭

I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first

A MyEpilepsyTeam Member