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I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
Hey Guys,
I haven't been on for a while and I'm sure it's already been asked but....
How many of you have had the Covid-19 shots (and which one and why).
Also, my doctor wants me to get Pfizer along with my partner,
but by the time he gets it his work would have started and he won't because he hasn't had the shot.
Again, we can have the Astra in a few days and everything would be alright.
I'm very confused,
I am alright I had the Oxford Astra zenica an I am perfectly alright they are saying for the booster we might get the one the doctors are asking you to have they have studied having them mixed first… read more
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
Hum
When did you get it?
1950s
1960s
1970s
1980s
1990s
2000s
Diagnosed 1992 I think winter. Oh wait nope summer.
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
i want to know as much as possiable about it they r talking about doin this on my daughter
Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more
I've got complex partial seizures with identified abnormality in my temporal lobe. Seizures are focal so my neurologist said surgery is an option I should consider, but I'm pretty scared and not sure it is worth it. My seizures aren't very bad and I could still lead a mostly-normal life but I plan to become a doctor and with sleep deprivation being a major trigger for me it may prevent me from pursuing my desire to work in a hospital (which means long hours). Im not sure about the process of… read more
Tonight I am going to divide the 3000 mg of Levetiracetam Extended Release tablets and take half at bedtime and half in the morning. This is to stop the afternoon seizures.
Does anyone else take the extended release twice a day and if so how much do you take and does it work well that way for you?
FYI: My doctor has prescribed it this way.
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more