Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
Im going on a trip soon thats a 17 hr time difference ahead of where i normally live. Ive gone through 2 hr time differences at most. Has anybody gone on far distanced trips? How did that go with the seizures? Was it harder goinng to your travel destinatiom or bacck home after? Any advice to hopefully help make if slightly easier with managing the seizures?
I have travelled to Europe from NY, that’s a 6 hour difference; 17 hours is a whole other story.
The advice I would give is to adjust your meds according to your usual time intervals, and not just… read more
I have noticed that a lot of stories say that epilepsy was diagnosed when you have been in your late teens or early 20s but has anyone been diagnosed in their late 30s or early 40s?
I was 68 when i started to have ‘funny turns’. 4 years of testing followed without a diagnosis. At 72 I had a massive tonic clonic convulsive seizure which I’m told lasted 25 minutes. At last they had… read more
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
I no longer have these, but it used to be a common occurrence. I know there are many, many types of seizures but have never found one that fits what used to happen to me. Can anyone tell me what this is??
* It lasted an entire day. From the time I woke up until I went to bed at night. Usually about 13-16 hours. Was always fine the next day
* I was always conscious.
* Never extra tired.
* No twitches. No pain or even physical discomfort of any kind.
* Most people didn't know anything… read more
Sounds to me you are experiencing Peti Mal ( absence seizures ) and Complex Partial Seizures. ( Focal unimpairment awareness .)… Meaning you’re I know where, or what conscious of what you’re doing… read more
When did you get it?
Got that degree in 2012.
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
Hey everyone new here
Just a little background. I was diagnosed with Juvenile Myoclonic Epilepsy in 2017 and I am 30 years old. As many of you know you can also have Tonic Clonic and Absence seizures under this umbrella, so to speak. I have suffered status twice from tonic Clonic seizures due to flashing lights. Just wondering if anyone has been diagnosed later in life. I also have a Chiari malformation which is a herniation of my spine into the fornum magnum ( back of the skull) of… read more
Well let us know what happens. Best of luck.
I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.
Some songs that I like:
#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more
I'm curious what the consensus is here