I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I had more seizures in my 40's than any other time except my teens. The seizures I had in peri menapause were also more severe, causing a loss of memory and balance. It took weeks to get over each… read more
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
Since my last seizure, I find my attention span is much shorter, especially when reading. Anyone else experience this?
My wife is on higher than recommended daily dose of Keppra, 1875mg in the a.m. and 1500mg in the evening. She is 33 and we discussed more children but I worry about her age along with medication causing birth defects and having to care for a disabled child on my own if anything happens to my wife.
Most data says K hasn't caused both defects. Most AEDs are quite safe. Dr can tell you best to get rid of any worries bout any harm to baby too. Age 33 should not be a problem actually quite young.
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
I still ask myself why me out of all 10 siblings. How am I the only one who is not healthy. My parents are perfectly fine with no health problem. Did I do something wrong or did I hurt myself that I can't remember to be diagnosed with epilepsy.
Hi StephanieSmith2 ! Sorry this has happened to you in life. We all have different stories, some worse and some not so worse. But many with an illness like epilepsy can have a harder life than a… read more
Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more
Hi ya it s not easy working with epilepsy I take my hat off to all them that do like you say it s when you're I'll and having to take time off bless you never give up ☺️