Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.
Some songs that I like:
#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
i want to know as much as possiable about it they r talking about doin this on my daughter
Mine is 300mg bid
Only 2 grand mals since 2015 and monthly absence seizures
I take 250mg morning and evening. This has increased slowly over 8 years.
As far as I know, I haven't had a seizure in over a year. It took me 11 months to feel like myself again after the last one. Then I had 3 months of feeling really good. Now all of a sudden the side effects (brain fog, memory, exhaustion, depression, word recall, etc.) are back. I'm trying hard not to feel like I'm backtracking and to view it as all part of the package. For those of you whose seizures are under control, do your side effects come and go?
The first time my kids saw me have a major fit was in 1998( I'd been diagnosed in 1978 ) My boys were 13 & 11 ,my daughter was 9 .She sat on the stairs crying - the boys ran next door who called… read more
When someone asks me, "What does epilepsy feel like?" I describe it as "having an invisible stalker with a TASER" and/or "being controlled by a sadistic puppet master". I also tell people my brain has been "rewired by a drunken technician".
Cathryn that is exactly what happens to me. I can hear and know what people are saying just can’t speak back. Get like an intense hot flash and nauseated. About 2-4 every 15-20 days. No meds have… read more
I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?
I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too
I had between 20 too 30 episodes a day for at least 10years before the age of 15 they were temperl lob apsint mind. I would use better words if I could spell them my microphone isn't working for speak to text.
Iv been off medication since 18 which is around the last time I had one