i want to know as much as possiable about it they r talking about doin this on my daughter
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
When did you get it?
Diagnosed 1992 I think winter. Oh wait nope summer.
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
Weird question. But has had anyone had any type of surgery where they have been put under anesthesia, and if so did it effect their seizures. I had knee surgery and it was noticed by some people that for a while when the anesthesia was in my system ( for the first week or two as anesthetics last in the body for a while) my seizures were absolutely non existant and i noticed i didnt experience any of my normal symptoms with my epilepsy. Has anyone else experienced this?
Sorry to hear that it triggered the grand mal seizures, but it is great that you are not having any since
It would be great if you can get to a long-term seizure free state with the petits mal too,… read more
I submitted a reasonable accommodation request on 10/18/22 asking that my job give me 12 hours off of work, specifically during the hours of 7pm to 7am, due to the fact that I must wake up at 6am to get my children ready for school. Also to see to it that I may get enough sleep, because the recommended amount of sleep for someone with my disability is 8-10 hours of continuous sleep per night. My boss agreed to accommodate my request for one week only: 10/31-11/05/22, even though I… read more
Easier said than done. But you deserve better than them!!!!
I know the tests said my memory was poor. When given directions, I did not carry out the task well or consistently. The inability to do so the Doctor felt would getting and keeping a job difficult.
@A MyEpilepsyTeam Member It wasn't that great when I was at school either I was diagnosed in 94 started school in 2000 and didn't officially start a support class until year 3. And even when I did… read more
I have been epileptic since I was about 7 years old and am now 27 years old and feel like this past year has been one of the worst when it comes to the amount of seizures I’ve had
At the beginning of 2019, my doctor and I decided to try a new medication called Lamotragine and slowly take me off the older medication carbamezapine as I wasn’t fully under control. While I was on the carbamezapine I would have about 1 seizure/year and it was durable and livrable. We decided to lean another… read more
I had a right lobectomy surgery back in 2012. It never stopped my seizures but it did reduce them by more than half! I was haveing about 20+ gran mal seizures a year and now im having like 5-8 a year… read more
In general what jobs do people with uncontrolled epilepsy do?
I have a degree and worked as a Counselor till I had a massive heart attack.
I was reviewing my sleep log (started keeping one July 13, 2018). I haven’t been to bed before midnight. A couple of nights I went to bed at midnight but more often it is between 2am-5am. I don’t have a consistent sleep pattern. Some nights it’s 4 hours, some nights it’s 10 hours. Regardless of how many hours I sleep, I feel wiped out when I wake up.
What is your experience like?
I'm flakey as far as my sleep schedule. It's regular, but off hours. Unless I'm involved in physical activity, by 9:00 pm I can't stay awake. If I go to sleep, I'm up by 4:00 am, wide awake. I keep… read more