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My first EEG came back abnormal. I get seizures daily and now I am taking the 3 day EEG at home. I want to make sure I don't do anything that would give wrong results. Can medication, drinking coffee or moving head cause it to be abnormal? Can the EEG not show my seizure? I want to make sure that this test will show what is happening. Can the test be normal even though the seizures are happenings? I am having so much anxiety about this
I am having the seizures and if this test is not showing… read more
Does anyone do support groups where they live? I am having a lot of issues at home, because of my health. Dr's are not helping either. I would love to be around others that understand and possibly can… read more
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
i want to know as much as possiable about it they r talking about doin this on my daughter
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
When did you get it?
1950s
1960s
1970s
1980s
1990s
2000s
Diagnosed 1992 I think winter. Oh wait nope summer.
Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more
I had a 5 hr seizure episode on Monday, no loss of consciousness, just thendrops, myclonic jerks, ect
For the last 2 days, I've been so tired, nauseated and a hv huge headache. Also I'm feeling panicky. I hv this imminent sense of doom and my aura just won't go away
So I caved at called my pcp, cause I havent seen a neurologist is over 12 yrs.(I am cutrently not on any meds) Ofcourse he sent me to the E.R right away and here I am, waiting to been seen. I'm freaking out, what if they wanna… read more
The longest time I've had one was 30 minutes. My worst ones as an adult was 11/29/2014 I had 6 seizures 30 minutes each one right after the other. Right before that I had made it to one year without… read more
My potassium was below a 3 when I 2 back to back. I'm now on 10 Meq's which is 8 pills a day.
I asked a similar question I have had low potassium after seizures. And even prescriptions now given to me.
I ask this question because I honestly do not know where I would rate my neurologist. I am not holding it against him that I have not seen him since December 2019 because I he was preparing to get me scheduled to to to the Tufts Medical Seizure Center in March of 2020 when access was shutdown because of the pandemic. Right now, we do not interact at all and he simply faxes in a new prescription to the pharmacy when requested because we need time at that seizure center to figure out what to do… read more
mine is a 1
How helpful has had LNS, VNS, and/or Deep Brain Stimulation been for you ? How successful was any that you have had for you? Score 1 = being great (long-term seizure free state) and 10 being a failure and more trouble than what it was worth
How many time per year are you having some battery replacement or other maintenance for LNS or VNS?
NOTE: Here is some details about each from the Epilepsy Foundation: https://www.epilepsy.com/treatment/devices
As much details of your own experience… read more