My doctor says that I have mini seizures on top of my grand mal and epilepsy? I have never heard of anything like that before, but I getting really jerky and shaky and not able to hold on to things. It is so frustrating. I was just wondering if anyone else knows or has these?
I have experienced mini-seizures before. I was told by my neurologist these quick sudden jerks/twitching in your hands, arms, shoulders and whole body are from myoclonic seizures. These seizures will… read more
I'm going to have the RNS implant in March. And all I want to know is has anyone else had it done and dose it work . I go in March to Vanderbilt medical center in Nashville Tennessee.
When did you get it?
Diagnosed 1992 I think winter. Oh wait nope summer.
I was on high doses of Dilantin for about 40 years. I was sure it was messing with my memory but the medical profession refused to admit it. Finally, doctors have come to acknowledge that long term use does, in fact, have negative effects on brain functioning and have taken me off it. I have tried a number of different drugs in the past ten years. Right now I am on Kepra and clobazam. The problem is, nothing is working as well as Dilantin did. I raised my family without having seizures and… read more
I'm 51 been taking Dilantin since 4th grade. My gums have serious issues
I have grand mal seizures Myoclonic seizures but my neurologist and I have gone through every test in the book to find where the seizures misfire in my brain. We can not find it, no where? Any ideas?
I have had to many eeg’s in my life. I have had at least ten where I was stuck in a hospital. Once I agreed to stay in the hospital 🏥 for one. The last one is when I had all the electrodes glued to… read more
There are 2 possibilities
1. You experiencing bad side effects of your medication(s)
2. You are actually having , some form of a seizure.
I too have blackouts. They are a type of seizure . I also… read more
I am just about to meet the surgeo. Asi am a candidate for surgery (all my tests confirm i have a focus point (dysplasia) in my frontal lobe.
It has been mentioned to me that the surgeon is proposing 1 step surgery (i.e no grids inplanted etc! Which is pleasing to hear)
Who has had this surgery? Postive outcomes?negative outcomes?
Would love for any info feedback!!
Could you please share how surgery went
Do you guys drive?
Losing the right or ability to drive is not only hard it just down right sucks! It is a means to independence. I haven’t driven in almost 9 years and I hate every minute. Having said that I look at… read more
Surgery may be an option but I am very nervous about it. Any information you can share will be appreciated.