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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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About Flashback Problem
A MyEpilepsyTeam Member asked a question 💭

I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first

A MyEpilepsyTeam Member

Hum

Prevergen, Neurvive, Potassium? Thoughts, Experience? I Didn't See Any Of Those Mentioned In The Vitamins, Minerals, Supplements Chain
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

My siezure RX depletes my body of Magnesium Oxide. I was having severe cramping muscles. I also am B12 deficient. Other blood levels good. Hope Mum is feeling better! GOD BLESS!

How To Improve Your Memory Recall?
A MyEpilepsyTeam Member asked a question 💭

In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more

A MyEpilepsyTeam Member

It is addictive. I put "Clonazepam dependence symptoms" into Google. There are several articles.
I'm sure this information is included with packaging.

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Epilepsy Diagnosis
A MyEpilepsyTeam Member asked a question 💭

When did you get it?

1950s

1960s

1970s

1980s

1990s

2000s

Last of 101 replies sign up to view previous answers
A MyEpilepsyTeam Member

Diagnosed 1992 I think winter. Oh wait nope summer.

Does Anyone Here Have Temporal Lobe Epilepsy ?
A MyEpilepsyTeam Member asked a question 💭

i have had epilepsy since 4 and i was recently diagnosed with temporal lobe epilepsy and my epilepsy specialist said that surgery might be a good option but i also have other types of epilepsy so i dont know if my other types would be affected not only that but i have a traumatic brain injury and acute encophalophaly

A MyEpilepsyTeam Member

Francis2,
I don’t blame You!

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Has Anyone Had Surgery To Correct Seizures Coming From The Right Temporal Lobe?
A MyEpilepsyTeam Member asked a question 💭

Surgery may be an option but I am very nervous about it. Any information you can share will be appreciated.

A MyEpilepsyTeam Member

I'm recovering from my Right Lobectomy Brain Surgery.🙂 I had it on 12-3-12. I've been seizure free 6-5-13. I've been seizure free for almost 10 years. 🙂 I've been having seizures since I was 6 months… read more

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Who Has Taken Klonopin Long Term?
A MyEpilepsyTeam Member asked a question 💭

My sleep doctor put me on it because I was literally getting zero sleep for a month due to seizure activity and gabapentin making my brain feel on fire. My neurologist wants me off it because it’s “just a tranqualizer and causes memory issues”. I’ve been on .5 for a month and have slept beautifully. I don’t have an addictive personality and really would like to stay on it because im enjoying sleep, but am worried about long term.

A MyEpilepsyTeam Member

I've taken it for 13 years.im getting weened off it(slowly) it makes me so tired

When You Were Told That Medication To Assist You, Did You Choose Surgery Or Alternative Solutions? How Well Did It Work For You?
A MyEpilepsyTeam Member asked a question 💭

I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.

If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more

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Has Anyone Taken A Seizure In Front Of Their Kids Or Grandchildre? What Was Their Response?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

The first time my kids saw me have a major fit was in 1998( I'd been diagnosed in 1978 ) My boys were 13 & 11 ,my daughter was 9 .She sat on the stairs crying - the boys ran next door who called… read more

Has Anyone Found Cranial Sacral Treatments Helpful In Soothing Your Brain And Body?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more