i want to know as much as possiable about it they r talking about doin this on my daughter
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more
From what I understand about Vimt the max dose is 800. How much are you taking
I know the tests said my memory was poor. When given directions, I did not carry out the task well or consistently. The inability to do so the Doctor felt would getting and keeping a job difficult.
I have a very bad short term memory but a good long term memory
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
Weird question. But has had anyone had any type of surgery where they have been put under anesthesia, and if so did it effect their seizures. I had knee surgery and it was noticed by some people that for a while when the anesthesia was in my system ( for the first week or two as anesthetics last in the body for a while) my seizures were absolutely non existant and i noticed i didnt experience any of my normal symptoms with my epilepsy. Has anyone else experienced this?
Sorry to hear that it triggered the grand mal seizures, but it is great that you are not having any since
It would be great if you can get to a long-term seizure free state with the petits mal too,… read more
Sorry ,I've not been on for a few months due to family illness. .I'm on 3 anti convulsants Briviact,Lamotrigine & clobazam. . I know this a benzodiazapine & quite a powerful med .)My new consultant suggested I come off clobazam,which I've done ,gradually,over 6 weeks.( I first took it as a rescue med about 20 years ago but it became a med I took am & pm about 10 years ago.I also take Briviact & Lamotrigine) .Absences & focal onset seizures haven't been controlled for 10 years. ) To cut a long… read more
I never had to get off of mine but I agree Kathryn13 about the symptoms of withdrawal. I hope you will get over them soon. Are you feeling better now? I am getting off my medicine and I don't know… read more
I'm going to have the RNS implant in March. And all I want to know is has anyone else had it done and dose it work . I go in March to Vanderbilt medical center in Nashville Tennessee.
As some of you know I have had seizures for 24 years. I am having these blackout spells in just 1 eye. My seizures are coming from a damaged nerve in the left side of my brain. I blackout in my right eye sometimes. I know its completely normal, but I was just wondering if other people have had them.
Yes but I put on new med and good. Thank God