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Real members of MyEpilepsyTeam have posted questions and answers that support our community guidelines, and should not be taken as medical advice. Looking for the latest medically reviewed content by doctors and experts? Visit our resource section.

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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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Sleep
A MyEpilepsyTeam Member asked a question 💭

My son have trouble sleeping. Is this normal in epileptics?

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member , I’m definitely not on the. I’m on 5 other prescriptions brands . 1 or more of those probably have the side effect of my insomnia.

Hopefully, when my DBS power box is on and… read more

Was Wondering How Long It Takes Some People To Get Their Memory Back After A Seizure?
A MyEpilepsyTeam Member asked a question 💭

I sometimes find it takes a few days for my memory and concentration to get back to normal.

A MyEpilepsyTeam Member

I figure everyseizure is 3 ,4 days blanked out of my memory.in over55 years a ot of lost time.Onetime went to florida by car from massachusetts with some friends.Was entering florida had agrand mal.to… read more

Pill Reminder
A MyEpilepsyTeam Member asked a question 💭

What do you do to remember to take meds when you take more than once a day!

A MyEpilepsyTeam Member

And my phone scares the heck out of me all the time with reminders

Hi Everyone, I Have Simple Partial And Complex Partial Seizures. How Long Do Yours Typical Last?
A MyEpilepsyTeam Member asked a question 💭
A MyEpilepsyTeam Member

I’ve had a few like that, but not very often. It’s when I’ve been stressed and lack of sleep happening. I try to avoid that because those will impact me for days. Hope you recover soon.

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Status Epilepticus
A MyEpilepsyTeam Member asked a question 💭

My 5 year old daughter was diagnosed with epilepsy last year. She's been having seizures every 1-2 months since then. But when she has a seizure, it never stops on its own. Every time, she has to go to the hospital and receive diazepam injection. Is there any other person with similar conditions? Will it get worse with time? I'm so worried.

A MyEpilepsyTeam Member

I've never dealt with a kid with epilepsy just myself. See if her doctor would give you a concentrate (liquid) RX of diazapam or lorazapam and educate you on the dosages for her seizures. It can go… read more

When You Were Told That Medication To Assist You, Did You Choose Surgery Or Alternative Solutions? How Well Did It Work For You?
A MyEpilepsyTeam Member asked a question 💭

I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.

If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more

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Has Anyone Had Surgery To Correct Seizures Coming From The Right Temporal Lobe?
A MyEpilepsyTeam Member asked a question 💭

Surgery may be an option but I am very nervous about it. Any information you can share will be appreciated.

A MyEpilepsyTeam Member

I'm recovering from my Right Lobectomy Brain Surgery.🙂 I had it on 12-3-12. I've been seizure free 6-5-13. I've been seizure free for almost 10 years. 🙂 I've been having seizures since I was 6 months… read more

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Epilepsy Started In My Life At Age 55 And It Came Out Of Nowhere.
A MyEpilepsyTeam Member asked a question 💭

During a pleasant, perfect late spring bike ride in 2011 (I've biked regularly since age 25) on a great well-known trail, my vision suddenly turned weird. All the beautiful colors of late spring turned suddenly to only 2 colors - red and gold. It stayed that way for about 10 minutes as I slowly biked along the trail. Normal vision then returned. In subsequent weeks other events occurred. I lost the ability to speak properly for 1-2 minutes and the ability to write down simple words in English. I… read more

A MyEpilepsyTeam Member

I was classified as "reason unknown" for 55 years, until I started with a new neurologist (one in Boston rather that Southeastern Massachusetts), and I had my first of all of these: 2 brain MRIs, Pet… read more

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I Bit My Lip
A MyEpilepsyTeam Member asked a question 💭

I had 3 seizures on Saturday and bit up my lip and tongue pretty bad. Any ideas on how to ease the pain help the healing process. I've already been trying sea salt and warm water

A MyEpilepsyTeam Member

I swear that is the worse. I'd like to know too