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When did you get it?
1950s
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Diagnosed 1992 I think winter. Oh wait nope summer.
Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
Thanks for the information and to the helpers! Very important and much appreciated!
anyone know how to get someone to back off if thier giving you a hard time about your epilepsy an related issues . My professor feels like I getting one over on the systems and i feel is riding my ass
Yes file a complaint , he is just ignorant .
About 5 months ago my 2 friends took me to a emergency room at a local hospital. I had a falling seizure a day and half before and I had the symptoms of a concussion. My friends and I wanted to find out if I did have a concussion for sure. Disappointing experience we all had. Didn't find out anything about a concussion. A month and a half later I got 3 bills totalling right under 5 thousand dollars. Got my medical records for that day, for I could get anyway. It was full of lies, with… read more
Unfortunately, you have to let them know you are taking them to court, and if this does not inspire them to listen and fix the records, then take them to court.
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
In the case of most of us (unless those who suffered brain damage that specifically damage to long-term memory in the inner brain with the hippocampus and memory central command) or are suffering from dementia (easier to get a test now that can show if you have early stages or soon will have do to recent research published earlier this year), then all of your memories (nothing that occurs during a seizure except those seizures like the Simple Partial Seizures that you are completely aware… read more
According to my research Clonazepam/Klonopin was first approved by the US Food and Drug Administration in 1976. This approval means that it will be available from pharmaceutical companies in a… read more
So due to my seizures, loss of memory, being confused and needing help weekly
My roommate last night asked me to move out. Said she couldn’t be a caregiver anymore. She only want to be friends.
This is the second time this is happened to me in the last six months. The sad part is you can’t do anything about it.
I have no income as I’m still waiting on SSI. It’s been a year. Spoke to a lawyer today said they’re still working on it. Are there any resources for people like us for living… read more
I agree @A MyEpilepsyTeam Member, I think contacting Epilepsy Foundation is a solution. I know disability is different state to state. I am currently looking into disability. It is a process. My… read more
I know that if I had a grand mal seizure when I was at Brigham and Women's Hospital for EEG Long Term Monitoring, then a separate recording device in the room (wireless) could have been used in the research for this potential replacement for all of the wires needing to be attached during EEG testing and especially EEG Long Term Monitoring. This was not the standard clinical trial because it is simply getting the patient in the EEG Long Term Monitoring to agree to have the wireless machine in… read more
No need to apologize. I have done the same in the past too. Most of the friends on this site will not mind either.