Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
I sometimes find it takes a few days for my memory and concentration to get back to normal.
I figure everyseizure is 3 ,4 days blanked out of my memory.in over55 years a ot of lost time.Onetime went to florida by car from massachusetts with some friends.Was entering florida had agrand mal.to… read more
Does anyone manufacture a watch to alert to seizures, heart problems, etc.
I only have two skinny wrists, so I don't have a lot of room for multiple watches.😁
My phone doesn't automatically call 911. It sent a picture to certain contacts. When I had a heart attack & my daughter called 911 from Michigan I tried to convince EMTs all I needed was a… read more
Hi my name is kimmie. I am 45. The only one in my family with epilepsy is my cousin. I didn't have any problems until few years ago. When i was 22 i was in a Motorcycle wreck with no helmet. My head is what broke my fall doing 60. We hit a northern deer. I have memory problems till this day. About 4 years ago my long term boyfriend of 17 years cheated on me. I was so stressed out from the mean things he said and did that i started to blackout and fall to the gound and would and Contort while i… read more
Kim614, my seizures didn’t actually “appear” until 6 years after my accident. About 70% of brain injury survivors will experience at least one seizure in their lifetime, and rarely just the one. So… read more
My wife is living with epilepsy and I am so scared to death of losing her. I would like to know if there is anything we could do, or is it something that's inevitable?
I would say when for some reason the seizures can not be controlled, no matter what they do
I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?
I agree especially with MarKC - thanks for reminding me of ' non epileptic seizures' I've also heard of them being called ' pseudoseizures' too
I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.
Some songs that I like:
#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more
Earlier today, a rain storm came through. Maybe a minute before this, something happened, rather not discuss it. Thought about brain tumors and intracranial pressure. When the barometer drops, ICP is higher than the pressure outside of the head. Had brain surgery, and brain tumors have the same effect- the tumor presses on the brain. Any experiences with sudden changes in air pressure?
Me too. Exactly my experience, every word. Even what my neurologist said to me this morning, exactly word for word. He said he had deep experience with epilepsy for many years and never heard of air… read more