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What Treatment For Epilepsy? I've Been On 6 Different Meds.
A MyEpilepsyTeam Member asked a question 💭

Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

A MyEpilepsyTeam Member

I have been on too many meds to count. I was on phenobarbital, volume, Dilantin, Depakote, Topamax, and vimpat just to name a few. My son is on Trileptal, Keppra, Onfi, Depakote (two, 250 mg, and… read more

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What Songs Do You Listen To, To Cheer You Up?
A MyEpilepsyTeam Member asked a question 💭

I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.

A MyEpilepsyTeam Member

Some songs that I like:

#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more

Marijuana And Seizures
A MyEpilepsyTeam Member asked a question 💭

Marijuana can help seizures (not in huge amounts in a safe amount) at least I’ve heard I asked my own neurologist and she said it does but not in crazy amounts I personally smoke weed and I’ve found it does help (when it isn’t super bad) if you do yourself what’s your opinion if you don’t still drop your opinion in the comments

A MyEpilepsyTeam Member

Nicotine causes them I have to quit which is difficult but I feel like depending on what type of seizures you have depends on how it effects you

Anyone Ever Have Epilepsy Brain Surgery? Can You Share Your Experience?
A MyEpilepsyTeam Member asked a question 💭

Theyve been trying to get me to get epilepsy brain surgery for years the older I get the more I'm considering it as I'm seeing how it's affecting my life as an adult. I just want to hear other people who have already done it experiences so I know what I'm getting into. Did it completely cure you? Did your seizures get worse? Any mental changes in personality or mood? How painful was it? Etc.

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member mine was so long ago I forgot about the puffy eyes. I had that as well. You have the same triggers as me

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When You Were Told That Medication To Assist You, Did You Choose Surgery Or Alternative Solutions? How Well Did It Work For You?
A MyEpilepsyTeam Member asked a question 💭

I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.

If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more

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What Is Your Sleep Like?
A MyEpilepsyTeam Member asked a question 💭

I was reviewing my sleep log (started keeping one July 13, 2018). I haven’t been to bed before midnight. A couple of nights I went to bed at midnight but more often it is between 2am-5am. I don’t have a consistent sleep pattern. Some nights it’s 4 hours, some nights it’s 10 hours. Regardless of how many hours I sleep, I feel wiped out when I wake up.

What is your experience like?

A MyEpilepsyTeam Member

I'm flakey as far as my sleep schedule. It's regular, but off hours. Unless I'm involved in physical activity, by 9:00 pm I can't stay awake. If I go to sleep, I'm up by 4:00 am, wide awake. I keep… read more

Has Anyone Had An Operation For Their Epilepsy?
A MyEpilepsyTeam Member asked a question 💭

Been having attacks recently and dr looking at operating. Any advice?

A MyEpilepsyTeam Member

I had "epilepsy surgery" at the Mayo Clinic known by many as "brain surgery" for my quite bad seizures. It looks like things are working out

Time Between Episodes.
A MyEpilepsyTeam Member asked a question 💭

I was diagnosed with febrile seizures (fever) when I was a child (13 m. o. to 7 y. o.). About a month ago, I was told that a seizure caused my work place accident. I have thought of other things that could cause like fainting or blacking out. I even discussed it with the neurologist. He says he 90% sure the seizure caused me to blackout, hit my head, and fracture my lower jaw.

Has anyone else had this long of period between episodes? I feel, within the last ~four weeks that I am losing my mind… read more

A MyEpilepsyTeam Member

@A MyEpilepsyTeam Member, I am doing pretty OK. You are right, life will be "alright". I will do everything to keep myself safe. Ups and downs are teachable moments.

Has Anyone Ever "unlocked" Stress Seziures?
A MyEpilepsyTeam Member asked a question 💭

Ive had epilepsy since i was born on my 18th birthday my brother stressed me out so much the doctor said i "unlocked" my stress seziures. They are nonelectrical so they couldn't pick anything up on sleep study.

A MyEpilepsyTeam Member

Steve, right now you are in the midst of intense spiritual warfare. What adds to the problem is the negative side effects of the medications that you are taking, and MD's not believing what you try… read more

Vns Therapy
A MyEpilepsyTeam Member asked a question 💭

i want to know as much as possiable about it they r talking about doin this on my daughter

A MyEpilepsyTeam Member

I have a VNS also, I am not very organized so I don’t know where my 🧲 magnets have gone. The battery 🪫 in my VNS is dead 💀 right now. My neurologist recently told me there is a new and improved one… read more