I am also taking Divalproex...so if anyone is taking these two is it affecting you?
@A MyEpilepsyTeam Member , Continued from above: In mid 2019 I began having these verbal tics where I say or holler words, names, phrases or humming or moaning noises uncontrollably & I don’t know… read more
I’ve had a few like that, but not very often. It’s when I’ve been stressed and lack of sleep happening. I try to avoid that because those will impact me for days. Hope you recover soon.
My son is in the process of being tested for temporal lobe epileptic surgery. The neurologist told us it will stop the seizures. Has anyone in the group experienced this or have any positive feedback?
I had laser ablation in 2020 , the first 8 months i was seizure free, then i started to slowly get seizures again. Now i get them sometimes, mainly around my period. Or missed meds. I used to take… read more
Does anyone know if 200mg 2x day is a high dose? I mean I could ask my neurologist. Just curious.
I take 1 200 in morning 2 at night and mind are brand name and never had problem but came sz free goning on 25 yrs as also take Tegretol 400mg 1 in morning 1 at night same time brand name
As part of my little medicine cocktail I'm on 20 mg am ,20 mg am of clobazam ( Onfi ,Frisium) I'm still awaiting contact from my new neuro.I decided to reduce the night time dosage to 1 tablet .I know it's a benzodiazapine & strong Anybody had problems weaning themselves of this ? I don't intend to reduce it any more TIA
I din’t have Onfi but do have friscium!
The only thing that I haven't had to deal with until maybe mid 2000's I found out I have type 2 diabetes. That and the medication made me get dehydrated quite often. I have always had dealt with stress and Sleep deprived because I was hyperactive and insomnia. So I don't think that did it. But aa the years went by and added medication for diabetes I became more prone to dehydration. I couldn't drink enough water to stay hydrated. The day I had my last seizure after all them years I was so… read more
So far I can drive if I want to even on a medication. I just don't have a car lol. So it's public transit for me and my husband.
It was in 2014 is when the big scare happened with one of my seizures sorry I was about 2 years off
For example, maybe having to go off or reduce meds, during pregnancy and post, illness etc.
Some of the safest meds for pregnancy are AEDs now. Check with Dr bout yours just to ease your mind. When had kids 44 years ago only 2 meds to choose but not today. Ask Dr also what to expect while… read more
I had between 20 too 30 episodes a day for at least 10years before the age of 15 they were temperl lob apsint mind. I would use better words if I could spell them my microphone isn't working for speak to text.
Iv been off medication since 18 which is around the last time I had one
How many people still manage to still work full time and have breakthrough seizures?
I worked 6 days a week 50/hrs wk. for 35 years. I had worked in a lumberyard. I started working outside making houseloads of lumber. Very physical labor. I moved into customer service, less physical… read more