Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
Diagnosed at 5 yrs old. Had spinal menengitis when I was 2 months old and was in a coma and had a blood transfusion done which left a star shaped scar on my ankle that I've had my whole life. Been on… read more
Surgery may be an option but I am very nervous about it. Any information you can share will be appreciated.
Will it set off with excessive motion.
I have heard of this but I am afraid to shell out the money only ro have it not work. I'm waiting for it to be out a little longer so I can hear how well it works. If it works well, I would be more… read more
My wife is living with epilepsy and I am so scared to death of losing her. I would like to know if there is anything we could do, or is it something that's inevitable?
I would say when for some reason the seizures can not be controlled, no matter what they do
I love listening to music and i have a few songs i listen to when it's a bad day. I'm looking for some newer ones if anyone has one.
Some songs that I like:
#1. Mary J. Blige- Just Fine
#2. Owl City- Fireflies
#3. DiL- Don't Let Go
#4. Joeboy- Alcohol 🍸
#5. Kes- Hello 👋
#6. Efya- Best In Me
#7. Halsey- Without Me
#8. Selebobo-… read more
Do you guys drive?
Losing the right or ability to drive is not only hard it just down right sucks! It is a means to independence. I haven’t driven in almost 9 years and I hate every minute. Having said that I look at… read more
Not being believed is worse than a seizure. I hope your days are sunny and peaceful.
For those diagnosed later in life, how long did it take to overcome the sudden changes in your life? I was a total extrovert before seizures, always on the go. I never want to leave the house no because I'm scared of having a seizure in public or around friends most of which don't even know that I have them yet. The sudden change of not being able to drive has been very hard. It's been 13 months since I was diagnosed & I still feel completely isolated and cut off from the world outside my house… read more
I've lost most of my family and friends because of my condition!! But y'all and little few family and friends that I have in my life is worth living and fighting to get better if that's even possible… read more
What is the difference between an aura and a petit seizure. When I have an aura in which can last for hours I feel like a riot is going on inside me. People have told me to say something. I don't always have a seizure. I don't want to be the boy that cried wolf all the time.
Thank you everyone for your patience with me. I am new on this on line and I don't know what I'm doing all the time.
Hope and pray everyone has a great day.