Will epilepsy watches like embrace and epilert work for secondary generalized seizures
I do know someone had wristband on and they were just tying their shoelaces and the wristband told them they were having a seizure. It sounds like any wristband can't tell the difference between… read more
Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
When did you get it?
Diagnosed 1992 I think winter. Oh wait nope summer.
It's happened quite a few times at bedtime most recently last night, i feel heavy and disconnected but also like my body is moving around, my eyes quickly moving around...
After my right lobe craniotomy on 12-16-2020 being a constant burden on my family unable to help out, drive or work had a couple of trips via ambulance to the ER. Seen for: 8/2/2021
Pseudo seizures &… read more
if anyone is free to chat i am here
I’ve had epilepsy since the age of 2. I’m now close to 50 yrs. Of age
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
Im going on a trip soon thats a 17 hr time difference ahead of where i normally live. Ive gone through 2 hr time differences at most. Has anybody gone on far distanced trips? How did that go with the seizures? Was it harder goinng to your travel destinatiom or bacck home after? Any advice to hopefully help make if slightly easier with managing the seizures?
I have travelled to Europe from NY, that’s a 6 hour difference; 17 hours is a whole other story.
The advice I would give is to adjust your meds according to your usual time intervals, and not just… read more