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When did you get it?
1950s
1960s
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Diagnosed 1992 I think winter. Oh wait nope summer.
Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance
Since 2012
No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
Hum
Do you guys drive?
Losing the right or ability to drive is not only hard it just down right sucks! It is a means to independence. I haven’t driven in almost 9 years and I hate every minute. Having said that I look at… read more
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
I have Tonic-Clonic seizures every 2 weeks. I'm 51 and have been having them for 10 years now.
I started microdosing 3/10s of a gram and I still had my seizure every 2 weeks, but I went 4 months without a Tonic-Clonic seizure. https://www.magicmushrooms101.com
https://www.magicmushrooms101.com/shrooms-and-e...
The past year ive been thinking of doing it. Im glad to hear it has sone kind of a positive affect and hope it gets even better for you 😊
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
my new years resolution is to to be healthyer. just wondering what is your new years resolution(s)?
MarleneFerraro: thank you and good luck to you as well! i always have a list of things i'm working towards. Sometimes i dont hit the goal by the time i set it so i reevaluate and adjust what i need to… read more