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No need to apologize. Tell your neurologist's about the depression side effect of that medication
As someone who was once labeled as not likely to ever reach a long-term seizure free state (and have… read more
When did you get it?
1950s
1960s
1970s
1980s
1990s
2000s
Diagnosed 1992 I think winter. Oh wait nope summer.
I'm homeless and have been for the past 10 yrs and have been experiencing horrible things but don't have anyone to talk to that can understand coming from someone that has seizures too. My seizures aren't everyday but effect my everyday life. So I'm hoping to find someone that knows what i mean.
Sorry to hear that why are you homeless is they no one to help you find a place have you got a doctor my be he could help as it not safe to be sleeping outside see your neurologist shit sleep not… read more
I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.
If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more
@A MyEpilepsyTeam Member Everyone gets nervous. Usually what helps is if you talk to your epileptologist/surgeon. From the surgeon, I learned there was a better chance of dying from a car accident… read more
I am 100% positive that hormones are playing a huge factor in both the frequency and intensity of my seizures but I’m not sure where to start to address it. If anyone has any suggestions, PLEASE let me know!
I started with seizures just as I was coming out of menopause at 54. I’m going to be 64 in June. All of my family and friends as well as myself think my epilepsy was brought on by a hormonal change. I… read more
It tends to affect most of my personal life. It's quite embarrassing at times, working with a colleague for 3 years and all of a sudden you can't remember something like names. Going to your boss to ask or tell them or tell them something and just stand there because you don't remember. It's frustrating not to mention annoying.
I have a terrible memory. I do remember staying up late studying for exams etc. when I was in school for hours. I would read a chapter in a book then an hour later all that information did not sink… read more
Yes but for me it happens in stages,firstly i feel a different sense of reality, secondly i realise my coordination/balance/vision is impaired and thirdly i realise whats happening between a fog of… read more
I went out yesterday purposely and I'm happy again! I can't wait for this weekend! I'm going to finally do open mic again! Last time was 2020 and I blocked him. I spoke a little ruff to him first
Hum
Wondering who all is dealing with a child with LGS? Are 4 year old that we adopted has it and ever since they put him on clobazam he had been declining with everything . He has trouble walking talking eating. We were told now he is a 2yr old in a 41/2 yr old body
Hi @A MyEpilepsyTeam Member , You can connect with @A MyEpilepsyTeam Member whose 12 year old son has LGS Epilepsy & Autism. Hope this helps some. You should be able to click on her page name I gave… read more