Every couple of years I have seizures then my Dr wants to try something new or ups the dosage. The meds I'm on now are making me dizzy and off balance

Will it set off with excessive motion.

Im going on a trip soon thats a 17 hr time difference ahead of where i normally live. Ive gone through 2 hr time differences at most. Has anybody gone on far distanced trips? How did that go with the seizures? Was it harder goinng to your travel destinatiom or bacck home after? Any advice to hopefully help make if slightly easier with managing the seizures?

i want to know as much as possiable about it they r talking about doin this on my daughter

Any positive information on Epidiolex as the only meds? Currently on Zonagran. I'm reading and so many bad side effects. We asked our doctor to switch
Had a abnormal 24 EEG 1 month ago and in 2019,but not the cleavland clinic wants a 3 day EEG, I wish the shared data more . We have a functional doctor appointment and generics appointment. I'm my son's voice until he finds it and if takes fighting for his rights and researching like a scientist, then must be done.

I'm planning on having the temporal lobectomy surgery next month. What is the expected timeline of feeling better? My doctor said 5 weeks but I am interested to hear what that means. Does that mean in two weeks you felt better enough to go out or not need assistance or did it take longer? Thanks!

I have heard in the past from several friends who have tried many others including surgery, implants or non-medication alternative methods. However, I think it would help if those of you who have to share your experience with those are now at the point where they have been told that medication will never allow them to reach a long-term seizure free state.

If Q + A section was better organized, then I would not have to ask this question, but we have a support site, so we have to do what we can… read more

I was told I have Grand Mal and other Seizure Disorders one of them called Pseudoseizures . Anyone else ever hear of this? I'm told it's hard to diagnose and often gone undiagnosed or is missed. My family and I was just grasping the Grand Mal Seizures now there's more to try and sort thru?

I was wondering... you folks who are lifelong musicians... has anyone's playing ability remained unaffected, or only marginally affected? Or has it spiraled downward into a steep decline? The holy grail of a performing musician is flawless execution, has your execution been affected? How severely? Tremors? Loss of muscle memory? Loss of fine motor control or dexterity? Inability to multi-task, like sight reading while you play? Did you lose your "aim" working your instrument? Have 16th notes… read more

Hey everyone new here
Just a little background. I was diagnosed with Juvenile Myoclonic Epilepsy in 2017 and I am 30 years old. As many of you know you can also have Tonic Clonic and Absence seizures under this umbrella, so to speak. I have suffered status twice from tonic Clonic seizures due to flashing lights. Just wondering if anyone has been diagnosed later in life. I also have a Chiari malformation which is a herniation of my spine into the fornum magnum ( back of the skull) of… read more